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  • BILLY22's Avatar

    BILLY22 wrote on SurvivorSusan's wall

    Are we talking today (Sept 2020) or 4 years ago?

    3 Comments
    • SurvivorSusan's Avatar
      SurvivorSusan

      Finished the colon cancer treatments 2010. The esophageal cancer began 2019 with chemo/radiation followed by esophagectomy last year. Esophageal cancer returned Jan. 2020 and I just finished 5 week course of Proton radiation and chemotherapy. CT scheduled for next week.

      5 months ago
    • BILLY22's Avatar
      BILLY22

      Some methods that have proven to work for some EC patients (HER2).

      https://www.cancer.org/cancer/esophagus-cancer/treating/targeted-therapy.html

      Have you already been tested for HER2?

      5 months ago
    • SurvivorSusan's Avatar
      SurvivorSusan

      I do no recall HER2 being mentioned. I have an appt. with my oncologist in a week and I’ll ask.
      Thanks for the lead into that possibility.

      5 months ago
  • chiefomni's Avatar

    chiefomni wrote on SurvivorSusan's wall

    I am an esophageal cancer stage III survivor of 20 years. I have been through Chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF) www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get it at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Calls are in the evening at 8:00PM (EDT).We have two Thoracic surgeons that attend each meeting Go to https://fightec.org/services/ get more information. You can send me an email at [email redacted].

    We also have a conference call support group for recurrence and stage IV patients. This group meets on a monthly basis and we have a medical oncologist that joins each call. If you are interested please send an email to [email redacted]

    We also have a 24hour hotline to help with quality of life questions as well. The number is on our web sitehttps://fightec.org/services/

    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    We look forward to hearing from you
    Take care and stay safe.

    Bart Frazzitta
    President

    1 Comment
    • SurvivorSusan's Avatar
      SurvivorSusan

      Thank you. I wish I had known more when I was first diagnosed in 2019. I originally had chemo & radiation prior to surgery (esophagectomy with gastric pull-up ).
      A few days following the surgery there were new pathology results that showed microscopic cancer cells that were in the margin. Too late to go back in surgery to take more tissue out. So I was watched and tested for 6 months to see if any cancer reappeared. And my fears became a reality; there was a tumor growing again.
      My options were either two difficult surgeries or try Proton radiation and chemotherapy. I opted for trying the easy route and completed a 5 week course July 31, 2020.
      I actually have a CT scheduled next week to see how effective the treatments this year were. Crossing fingers this is the magic answer.

      5 months ago
  • SurvivorSusan's Avatar

    SurvivorSusan shared an experience

    Milestones (Kicked Stage IV metastatic colon cancer TEN years now!): Keep positive and be your best advocate.

  • SurvivorSusan's Avatar

    SurvivorSusan wrote on Jenvivace's wall

    I have been diagnosed with squamous cell esophageal cancer in the mud section, T3N1MX. Started chemo weekly with daily radiation and have 1 week left if treatments. Then wait a month fir scan to show if treatments were effective and if I’m a candidate for full surgery.
    I’m really scared about the surgery recovery. I had an upper left libe removed several years ago (metastatic colon cancer) and said I’d probably not do that again. How was your recovery in terms of pain, length before able to swallow again, and sny other thoughts you have.
    Thanks

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    SurvivorSusan started following

    Question: Help