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    Susan14 shared an experience

    Radiation (External radiation ): Radiation was difficult. Needed it in lower spine and right and left femur

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    Susan14 shared an experience

    Drug or Chemo Therapy (Chemotherapy): February 2013 began Revlimid

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    Susan14 shared an experience

    Drug or Chemo Therapy (Bone strengthening drugs): January 2013 began monthly infusion of Zometa

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    Susan14 shared an experience

    Drug or Chemo Therapy (Chemotherapy): Began Velcade (SubQ) and Dexamethosone November 30, 2012

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    Susan14 asked a questionMultiple Myeloma

    My mother begins Velcade next week and is fearful of side effects and the whole process. any suggestions on how to help her prepare?

    7 answers
    • Ibelieve's Avatar
      Ibelieve

      I am a 2 1/2 year survivor of MM. When I was first diagnosed with a very advanced stage of MM. I have already been treated with Velcade, Thalidomide, Revlimid, and now on Cytoxim (? spelling). I took Velcade through my port twice a week. I have received approximately 32 blood transfusions and 10-15 Platelet transfusions over the last 2 1/2 years. I also had severe pneumonia, which is a side affect of Revlimid, and I was put in the hospital but not in ICU. I understand her fear and concern. I understand that Velcade can do wonders for some people. From what I remember, other than needing blood transfusions and being tired Velcade was one of the least harshes treatment. Still, I am always tired but I have been told some of it is the chemo drug but most of it is caused from the cancer itself. Please remind your mother that she is a strong lady to endure everything that she has endured at her age. Any new drug will have side affects but a new drug gives hope and God give us hope. I wish I could remember more about the Velcade but that was the first drug I was put on 2 !/2 years ago. I wish your mother the best and you, too! Ibelieve

      over 4 years ago
    • Susan14's Avatar
      Susan14

      Thank you all for your caring and sharing. Unfortunately I don't think Mom will be having her first treatment on Monday afterall.

      I brought her home (she has an in-law apt in my home) on Tuesday from the rehab but on Friday she was readmitted to the hospital with possible pneumonia again and low hemoglobin - it was down to 7.7. (it was 9.1 on November 1 after the 4th transfusion.) she didn't want to go back to the hospital but the visiting nurse advised us to do so. she got one unit of blood beginning at 7:30 pm, then they were going to give her 3 different antibiotics via IV. she has very poor veins and they had such a hard time getting a line in and taking blood. the ER doc even tried using ultrasound. so they had to wait until the transfusion stopped to use the same line to do the antibiotics. she was so miserable and it was so hard to see her in such discomfort.

      Right up to the week before the first pneumonia she was very strong and enjoyed life so much - she drove, did aquaerobics twice a week, belonged to a senior chorus, played cards at the senior center, loved to cook and shop.

      the admitting doc said the chemo would have to be postponed and Mom said she didn't care. she's tired and doesn't want to fight and she told them not to intubate or resuscitate her.

      over 4 years ago
    • fazzie's Avatar
      fazzie

      I started velcase a week ago, I have had three injections with no real side effects other than red splashes on abdomen and they itch!!!! I will be off a week then start again with velcase and revlimid. I am really concerned about that!!!

      about 4 years ago