• susie81610's Avatar

    susie81610 started following

    User: CancerNews

  • susie81610's Avatar

    susie81610 shared an experience

    Decision Point

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      How are you feeling? We've been thinking about you and miss your presence here.

      almost 3 years ago
  • susie81610's Avatar

    susie81610 shared an experience

    Clinical Trial: Clinical Trial being put on hold have fluid around the lungs that I have been having to get drained now they found lesions in my brain so I go to see the rad. on Mon and the Ono. on Tues to see what we are going to do and see if they will still release me for trials or if it is going to do anything? So hard to get yourself worked up and excited just to be let down again.

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    • danellsar's Avatar
      danellsar

      So sorry to hear that you are having so many problems. My husband did not do well with the clinical trial drug he was taking. He was on it about 2 months and then had to stop due to side effects. Hope you get some good answers on Mon and Tues.
      Ellen

      about 3 years ago
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    susie81610 wrote on danellsar's wall

    Hi Ellen:
    I will find out everything this tuesday not sure about much as of yet all I know is that there are 7 of us and we all get a drug no placebos. Will let you know.
    How are you and the children doing? So glad its summer you can get outside at least.
    God Bless You!
    Susie

    1 Comment
    • danellsar's Avatar
      danellsar

      Hoping and praying this helps. How are you feeling otherwise? We're ok. Not grest but surviving.

      about 3 years ago
  • susie81610's Avatar

    susie81610 shared an experience

    Clinical Trial: So I picked the clinical trial I start tomorrow June 11th haven't been too nervous but just sitting here finishing the paper work and reading through some of the the stuff that the may do I'm starting to get nervous. Either way I go it is into the unknown because they don't know what to do with me. Having such a rare cancer doesn't help either. Need to get the paperwork done and get my mind into something else. Will keep you posted.
    Many thoughts and prayers to you.

    2 Comments
    • danellsar's Avatar
      danellsar

      Praying that this helps. My husband did a number of clinical trials. Is this a chemo trial?

      about 3 years ago
    • DaveWaz's Avatar
      DaveWaz

      Wishing you lots of of luck. You are in our thoughts and prayers, as always.

      about 3 years ago
  • susie81610's Avatar

    susie81610 shared an experience

    Decision Point: Had to decide if I wanted to stay with what I was doing which was helping but not enough or go on to the clinical trial phase.