• kalindria's Avatar

    kalindria wrote on suzqz's wall

    Hi suzqz, and welcome! You've found a great place to ask questions, get information, and share experiences. I was diagnosed with the same type of cancer; mine was stage IV and I was 58 years old. The good news is, I just passed the SIX YEAR ANNIVERSARY of that original diagnosis. Since my original diagnosis, I've had a couple of relapses. I'm currently still getting chemo but feeling good.

    Some time ago, I recorded a series of videos for WhatNext about my cancer journey. You and your Mom may find them helpful. I've included a link at the end of this message should you wish to check them out. My hair is longer now and I have a new knee but not much else has changed since I recorded the videos.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on suzqz's wall

    Hi there suzqz, thank you for sharing your journey and welcome to the site. Like most of us survivors you have certainly had a journey of ups and downs. Some of us have had a harder journey than others, I think yours qualifies as being in the harder category. But, here you are now on the other side and that is GREAT! Glad you have your hair back. I have my bald head photo right in front of the Christmas tree taken six years ago when I was diagnosed with stage IIIC ovarian cancer and undergoing chemo.Unlike you, my tumors were throughout my abdomen but not wrapped around anything. I am glad you are seeing the doctor on the tenth for a reversal of your ostomy . I know several people who had great results from that type of surgery, my dad among them. Six years from frontline treatment and the hair on my arms and legs is still sparse. I have noticed the skin on both arms is a lot bumpier than it use to be.
    Having been on WhatNext for six years I can tell you it is a good place for the added support that every survivor needs. Ask questions, visit with survivors on their walls ( the higher the number beside their names the more active they are on the site), and visit and post on our pinboard. The addition of videos and blogs is another useful and beneficial tool for survivors to use. I am here anytime to talk. Wishing you continued better days ahead.

    2 Comments
    • suzqz's Avatar
      suzqz

      Thank you for writing on my wall. I am encouraged by your 6 years out. My doc said return for this type cancer is 70/30. I told her I am in the 70 percentile and mine is cured and I am going to live to be at least 89. Cancer wasn't in my family, we all die of old age, I intend to continue that tradition. I hope to be active on the site and am happy to hear from other survivors of my type cancer. There is one lady in my church who had ovarian cancer. I think hers was one very large tumor and almost to the day of the 5 year mark hers came back into a few lymph nodes an she will take chemo the rest of her life. Hers also was not a genetic mutation, so the thought will always linger in my mind, but I believe in the God of the universe and see so many ways He protected me and led me through this journey and I never felt close to death even though I was and I believe I am healed. Thanks for sharing.

      3 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Well, I believe you will hit that 89 mark and perhaps beyond, you certainly have the right attitude. I was given up to two years by the doctor who finally diagnosed me but here I am. People surprise all the time. Let me know how things go with your surgery. Sending you oodles of support.

      3 months ago
  • GregP_WN's Avatar

    GregP_WN wrote on suzqz's wall

    Welcome to WhatNext, you have found the best place on the internet to connect with others going through the same thing as you and willing to share, inspire, and motivate you through your diagnosis and treatments. If you have questions please post them on the questions page here www.whatnext.com/questions. There are lots of people here that will be happy to help you. If you have any questions about how to find information on the site drop me a post.

    We hope you're doing well.

    GregP
    WhatNext Community Mgr. / Social Media Mgr.
    4X Survivor
    American Cancer Society Voice of Hope

  • suzqz's Avatar

    suzqz shared an experience

    Drug or Chemo Therapy (Chemotherapy): After severe reactions to the first chemo drugs I was put on Gemcitabine and carboplatin, except for the itchies at infusion time, they were very easy to tolerate and very few sides....minimal fatigue and nausea

  • suzqz's Avatar

    suzqz shared an experience

    Celebration (Hair is back): When I could no longer take taxol and bevacizumab, the drugs they gave me didn't make me lose my hair and it has been back now since September, except for armpit and leg hair, YAY

  • suzqz's Avatar

    suzqz shared an experience

    Celebration (Finished treatment): I am now a candidate to have my ostomy reversed and the first appointment with that doc is 1/10/2020

    1 Comment