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    swoods5678 asked a questionHodgkin Disease

    my life is ruled by fatigue

    18 answers
    • meyati's Avatar
      meyati

      I've tried rationing what I do, I've tried to get as much as I can before I crash. I'm like a limestone drip spring, where water drips into a pail or jug. When the jug is full, you use that water for your needs. When it's gone, you have to wait for the jug to fill up again. Sometimes I have to wait days for it to fill up. Sometimes, the water just doesn't go very far.

      I take folic acid, live on caffeine, magnesium with zinc, chromium picolinate, vitamin Bs, C, D, CoQ10, did I say-caffeine? and more caffeine? I seem to get into a rhythm, and have a few good days, then I crash and sleep about 16 hours a day-eating makes me tired.

      almost 6 years ago
    • DeborahNeary's Avatar
      DeborahNeary

      All good advice above. I am three years out from chemo and radiation and I still struggle with energy. My rbc and wbc are still below normal. My naturopath put me on green tea extract, L-Carnitine and also am taking a low dose of thyroid med for sluggish thyroid. I have gotten lax about the green tea, so many supplements to take. I just recently got some Mate tea, I very rarely drink coffee but am thinking about making that more frequent. I am very active, practice massage and teach FitAlign, equal to working 3/4 time, it is a struggle at times when I am tired but I do push through it. I am certainly not the night owl I used to be. I have a feeling that this is going to be pretty par for the course unfortunately. People tell me I am getting older (a young 60) but I think it is more than tha.

      almost 6 years ago
    • ritafaystageIV's Avatar
      ritafaystageIV

      I have just come out of a fatigue spell. It lasted 7 days. I will enjoy feeling better so much. I always pray I won't have another episode. Prayers for us all.

      almost 6 years ago
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    Procedure or Surgery (Surgery)

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    Radiation (External radiation )

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    Side Effects (Fatigue (tiredness)): 8years out of treatment and i am ruled by unexplainable fatigue. A litany of tests show nothing else causing fatigue. My life had been affected socially , occupationally, financially. Really getting "tired" of people suggesting that I could be depressed. I feel like i'm living in a body that wants to sing dance fly and be free but i'm constantly caged.