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    User: GregP_WN

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    Oh No (Other): The hardest part was not knowing what to expect next. We had no one to talk to and no way to know if what he was experiencing was pretty much normal or if he was not doing well. . . I bothered his chemo doc more than I should have, but didn't have anyone else to go to. Every cancer is so different with every patient, but to hear someone elses situation, and that they did make it through it would have helped.

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    Celebration (Finished treatment): Not knowing if the progress he was having, or lack of, was hard. It took nine months or more to feel like any progress was being made, and then all of a sudden better..................then much better..............now he has great days, back riding his motorcycle, but there are still days when he feels bad, or at least weak. . . His last chemo/radiation treatment was January first, today is September 7th. . . He was a big strong guy, playing 40 tennis when this started. Now not sure he can play for fear of falling over. But not saying he won't get to that point. He gets better every week.

    He had problems with bleed after the initial tongue surgery, causing more problems, that slowed his recovery. Swallowing was very hard, but he chose not to have stomach feed tube. Simply drank the liquid. Did not lose weight, but I had to force him to eat allot.
    Has trouble with beef still. Hot and cold was hard at the start, but now eats ice cream, and drinks coffee.

    Would have loved to have someone to talk to, that had been through it. We live in a small town, with few patients. Had his treatment in Portland Oregon at OHSU.through vetrans insurance....and THEY ARE WONDERFUL....we have no complaints, and much love for them.

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    Radiation (External radiation ): Combined with chemo my husband lost a full year of anything normal. Passed out fell over allot. The danger of hurting his head in falls was huge.

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    Drug or Chemo Therapy (Chemotherapy): There are so many chemo, must know that some hurt differently in long term recovery. Combined with Radiation many side affects we weren't expecting.

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    Procedure or Surgery (Surgery): robotic surgery to back of tongue