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    User: CancerNews

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    Decision Point (Palliative Treatment or Clinical Trial): I'm T4bN3M1 Advanced Recurrent Distant Metastasis. My current Dr (with the nurse from XXX) says "You'll be fine". Obviously I need to find a new practice to go to. Due to my extensive abdominal adhesions, abdominal surgery is not an option, besides that, it's too widespread. The big decision is TO HAVE CHEMO OR NOT and if so WHAT KIND.

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    Oh No (Cancer is back/Recurred ): I finally saw Dr by waiting at her car for 2hrs in the rain. She immediately did a PET that showed mets/recurrence to lungs, abdominal wall, aortic lymph nodes and GI & GU tracts.

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    Oh No (Problem with doctor): Nov 2012 Increased pain levels misinterpreted by nurse Practitioner as "Pill Seeking". From Nov 12 to Feb 13 this nurse went so far as to deny me access to Dr and try to send me to Pain Management without Dr's knowledge or my consent.

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    Other Care (Home care): Nephrectomy abscess had to be drained under flouroscope twice a week and home IV infusions for 2 months due to Klebsiella infection that spread to bloodstream.

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    Procedure or Surgery (Surgery): Nephrectomy Jan 2009