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    teachertara shared an experience

    Drug or Chemo Therapy (Chemotherapy): Cancer antigens are less than half of what they were in December: from 60.7 to 22.2!

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    teachertara wrote on Jennymay's wall

    Hi Jennymay,
    Sounds like we're in the same spot. Love to trade stories with you when you have the time. Best wishes!
    Tara

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    teachertara shared an experience

    Drug or Chemo Therapy (Chemotherapy): Started chemo on Feb. 18. I infuse Folfirinox (first three drugs) for 4.5 hours the first day, then take a 5FU drip home for next two days, Minimal side effects so far, good blood count after first round!

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    • Rick1970's Avatar
      Rick1970

      Hi Teachertara, Best wishes for success with your FOLFIRINOX treatments. Last week, my wife finished her 7th round of FOLFIRINOX treatments. While her initial side-effects were very minimal, the side-effects began to grow after 2-3 months. I recommend that you create a personal log (spreadsheet) and document on a daily basis key vitals and other activities . For example, we document the following data on 4 separate Excel spreadsheets: Sleep log, [email redacted] Log, Blood [email redacted] log, [email redacted] log, Physical Activity log, Bowel Movement by Bristol Stool Scale log, Nausea/Sickness log, Stamina log, Quality of Life log, All Other Special Comments log, Daily Food (Diet) log, and Daily Medication (Drug & Time Taken) log. It may sound like a lot of work, but working together it doesn't take us a lot of time.

      As a caregiver, these logs really help me to better observe and discuss my wife's concerns and needs. In addition, when we meet with her oncologist every 2 weeks, we share and discuss the data. Her Onc Doc loves it. Better yet, it's contributed to decisions on postponing one treatment after a C. Diff (Clostridium difficile) infection and related hospitalization. Plus, last week, her Doc fine-tuned the FOLFIRINOX regimen based on well-documented data. Also, her oncology infusion nurses use the data. Finally, during the C. Diff 6-day hospitalization the logs really helped us communicate with other Docs and the floor nursing staff. Please give it some thought. I think it will pay-off for you down the road. Rick

      almost 6 years ago
    • FreeBird's Avatar
      FreeBird

      Good luck.

      almost 6 years ago
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