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    Bug wrote on Teelee3's wall

    Teelee3, you mentioned in a post about waiting for a PET. Have you had that done yet? If so, how are you doing? Any results? If not, do you know when you’ll be able to have it? Thinking of you.

    7 Comments
    • Teelee3's Avatar
      Teelee3

      Bug, I didn’t notice the notification for your last comment until now...sorry about that.

      Unfortunately, I didn’t get the news I was hoping for. I have two lymph node Mets in the porta hepatis and one in the retroperitoneal area. I am now inoperable and incurable. After almost five years of hearing treatment with curative intent it was tough to hear.

      I really appreciate you checking in to see what the results were...you’re very thoughtful:)

      12 days ago
    • Bug's Avatar
      Bug

      Oh, Teelee3, dang it. Not the news we wanted. What about a second opinion? And have you connected with anyone on this site in the same situation? You never know what info others might have. I’m rooting for you.

      12 days ago
    • Teelee3's Avatar
      Teelee3

      Thanks Bug. I have been working with a cancer advocate in Toronto (I’m in NS Canada) and she is guiding me in my next steps. My oncologist actually said that these have been there since my last liver tumour 20 months ago and that I’ve been doing something to keep them growing in all that time. I do a ton of natural treatments as well as the chemo I did after my last resection. Who knows what kept them stable for so long. Anyway, he wants to wait a couple of months and see if they stay stable. I’ve ramped up my natural treatments, so we’ll see. Just trying to push chemo as far out as possible because I’m pretty sure it’ll be chemo for life when it starts.

      12 days ago
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    Teelee3 asked a questionColorectal (Colon) Cancer

    Spread to porta hepatic nodes

    7 answers
    • Skyemberr's Avatar
      Skyemberr

      It could be just inflammation there. I think the PET is going to tell you everything. The darned CEA is so unreliable. I had a fully obstructing tumor and it never got over 8. Now I have Mets and it reads much higher than it did when I was super ill back at the beginning.

      I asked about chemo because if you end up with a recurrence they will probably scratch the xeloda off of the list along with the folfox, so you may be able to predict what path the doc may take. FOLFIRI isn't too bad, but there are a few people who have a genetic mutation that makes them unable to process it. If you have that problem the doctor will be able to test for it. First clue is that you would have a very toxic reaction to FOLFIRI. My doc just turned it down to the lowest possible dosage and I am still able to do it. I do not have liver mets though and I do not know if that would change it up. Maybe the doc would also be looking at radiation? I don't know much about liver mets.

      Hopefully you have no mets at all and you will be logging back in here in a couple of weeks to tell us that it was just some inflammation or scarring and that you are still NED! I will be sending prayers your way for an easy couple of weeks with good news coming at the end.

      Keep us posted.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      @Teelee, I don't remember the CM size of them, but for my first diagnosis, there were 3. One was golf ball sized and two were like large marbles. For my second it was very small, maybe the size of a kernel of corn. My last one started out corn kernel sized but by the time I got the biopsy, diagnosis, referral to an oncologist, etc. two months had gone by and I had developed another golf ball sized node in my neck.

      about 1 month ago
    • Teelee3's Avatar
      Teelee3

      Unfortunately my PET showed that these lymph nodes are in fact Mets. After almost five years of hearing the words curative intent, it was incredibly hard to hear that I am now inoperable and incurable. What a roller coaster ride we are all on.

      12 days ago
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    Teelee3 wrote on Leo2778's wall

    Welcome. Your diagnosis is very recent, so I’m sure you’re still reeling. This is a great spot for support and to get questions answered. I am also stage four and in my fifties. I was diagnosed at stage 2 four years ago and it progressed to stage four two years ago. I’m currently NED and doing well. Hopefully you’ll get there too.

    1 Comment
    • Leo2778's Avatar
      Leo2778

      Thank you. I'm glad to hear you are doing well.

      8 months ago
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    Teelee3 wrote on djk's wall

    Hello and welcome. I am also 57 and have been dealing with stage 4 colorectal cancer for four years now. This is a great spot for support.