• TerryHoward08's Avatar

    TerryHoward08 wrote on buggyboo's wall

    Hi !
    As you can tell there is a lot of support available here with all these amazing women. You are in stage I, which I'm sure your doctors is the best stage to be diagnosed. I was diagnosed 8 weeks ago with stage II. I am 6 weeks post hysterectomy. Fortunately no cancer was outside of my uterus or in my lymph nodes, so 8 won't be doing chemo. however, to help decrease the risk of it returning, I am having 5 radiation treatments directed spe ifically to my vaginal cuff. My hope is that will be it, for now. I am sending positive thoughts your way!

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    TerryHoward08 started following

    User: Donna1943

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    TerryHoward08 wrote on Joachima's wall

    Thanks, again. I had another cancer survivor reach out to me, who was stage IV and has been in remission for 5 years! -But with some long term consequences, as you talked about.
    Did you have to work through this? I have another 4 weeks of recovery from the hysterectomy (which is going well and I assume I will be starting chemo shortly after that.)So since I have to go back to work ( in some capacity) I don't know how working will fit into all this. Any experience with this?

    1 Comment
    • Joachima's Avatar
      Joachima

      I recovered well from the surgery also. For me, chemo side effects were accumulative in that in the beginning they weren't as severe, but kept building after the first two treatments. I don't think I could have worked through the last couple of months. I stopped working as a full time social worker long before cancer and took care of my mother until she passed in March 2011. A few months later I was diagnosed. Anyway, I don't think I could have worked in that field with all of the stress that my job entailed. I do work at church where I am the worship/music director, among other things. I continued to lead in worship (song service) through treatment, except for once every third week when I had the stronger of the two chemo drugs. I tried to on the first time I got it, but passed out in church - my blood pressure dropped too low. I did minimal computer work throughout chemo. For me, chemo affected my concentration greatly - also some memory - even now, I have a difficult time remembering lyrics to songs -even the ones I've written- so I make sure I have them with me before I sing. With all of that shared, I don't think I could have worked a regular job while on chemo. The church has been wonderful and allowed me all the time I needed. BUT, everyone reacts differently to chemo drugs and somehow we all seem to be prescribed different ones. Hope this helps, Terri. So glad you found someone else to share their journey - I know it helps to talk to others who have walked in the same shoes. I was just talking to someone today after church - a young girl in her 20's going through chemo - we all need each other.

      about 4 years ago
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    TerryHoward08 wrote on Svaha's wall

    I was thinking of you and it sounds like a thumbs up so far, for your chemotherapy! ! ! What is the plan for the frequency and duration of your treatments? I will be following in your shoes before long.

    9 Comments
    • Svaha's Avatar
      Svaha

      Hey Terry. Round 2 of chemo went as expected with about the same side effects as the last time. head hair coming out in clumps so I had it shaved off . The rest of me is getting rather bald as well which isn't a bad thing actually. 8 or 9 days after the first chemo I developed a light rash on my arms and the dr thinks it may be an allergic reaction to the taxol. 8 days out this trip and nothing (yet) so I'm hoping. One more come the 24th of April and then off to the radiologist.

      about 4 years ago
    • TerryHoward08's Avatar
      TerryHoward08

      Thanks for checking in with me! I will be doing 5 rounds of radiation starting in a couple weeks. I won't be doing chem. as I originally thought, because after the uterus and lymph modes were biopsied, the cancer hadnt spread outside the uterus and my lymph nodes were clear. So I dodged a bullet, I know. And of course I am very thankful.
      It sounds like you will be done all chemotherapy shortly? Radiation- my doctor assured me, will have little to no side affects, so it might even be a 'break' from chemo. for you:)

      about 4 years ago
    • Svaha's Avatar
      Svaha

      I am so glad for you Terry and I hope after your radiation tx you'll get the all clear:-) Day 10 still no rash for me. Then a scan to see if anything is lurking (2 of 13 pelvic lymph nodes were involved microscopically for me) and then 3 more rounds of chemo and we'll see what happens.

      about 4 years ago
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    User: lisamarieb

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    TerryHoward08 wrote on Joachima's wall

    Hi,
    As I get closer to my post surgical appt. and discussing chemo., I have a couple more questions. I know physicans choose different drugs for each client, but I'm curious as to what the side effects were for you physically and emotionally? My last question is of course, the vanity one- did you lose your hair, and how was that/is that for you?
    Thanks so much!
    Terry

    7 Comments
    • Carol-Charlie's Avatar
      Carol-Charlie

      Hi Terry. My oncologist gave us a "Chemo Class: Those starting chemo for the first time attended. They passed out information sheets that told what chemo we were to receive. - How it was given - What side effects were possible, and what to do for each side effect. Some side effects simply said to call the doctor... as they seemed to me to be the more serious ones. When I started Chemo I was a Stage IIIC (Surgery had brought me there... I started out as a Stage IV, They removed a 39 lb tumor on right ovary and a healy left ovaray and tubes. (Had had a hysterctomy 18 years before) I had a port implanted in my abdomine and received chemo on a 28 day cycle. Day 1 I/V Chemo.... Day 2 and Day 8 I/P Chemo. Then waited through the 28th day and started over. Did this series six times. All the chemo drugs I received were 'the strong stuff'.... Prior to begining I took prescription drugs to alleviate nausea... It worked Great!.. Sometime , as I progressed and the drugs were changed.. I was give Benedryl during chemo... That was called napping for three to four hours. It just put me to sleep. I know my oncologist said I was taking everything very well. My worst side effect was being tired. I called ad asked and he told me... "Gee... lets see we're pouring deadly poisons into your body, it's fight them, it's fighting cancer cells... Yup it's tired." Then he laughed... I was 62 and was of disability Social Security - for intense back pain. Thus I could sleep and did. There was almost a week during that time that I'm not sure I was awake and functioning for more than a few hours. (Now if I'd had a family to care for I feel I could have)

      As to vanitity... I was so bad I had several wigs. All the same - the exact color of my normal hair.. In all the pain I'd been in for the year or two prior to being diagnosed... I had stopped being blonde . I felt old and ... well I'd stopped caring. But I was vain enough that when I got up - I got dressed, put on makeup and my 'hair'.. Women in chemo with me, about my age loved the color... PaulaYoung.com sure sold a lot of Color 18/22. After almost a year of the chemo I bought a couple light blonde wigs. My husband loved them... I did too. So now I felt younger.... I went in for my "after chemo' meeting when I'd done my six series. My oncologist said I was still cancer free BUT.... New studies showed that if after completing what I'd had that if the patient took chemo once a month for a year.. - 12 more months of bald (my hair at that visit was shockingly WHITE and about a short crew cut length).... I remember quietly reaching up and touching the stubble... He touched my shoulder and said... Yes Carol it will fall out again.. I asked him "if I were your mother ... and I could have been.. would you ask me to do this next year?" He responded... "If you werre my mother, I'd make you do it.." I did the next year... actually... I did thirteen months, but then who's counting???? I was still cancer free at the end of almost two years of treatment.... Now five years after that I remain Cancer Free. My hair came in very very sparce and white!...To this day I have acquired way to many wigs... but I have short pixi blonde wigs... longer pixie blonde wigs, a short puffy style that has a lace front that I can comb back off my face and people me included look and look and you sware the hair is growing out of my head... My DIL pulled on it cause she didn't believe me. And I sware the wig didn't more... I had to lift it to convince her it was one... Terry every patient is different in how the drugs act and what they do... But try to put one foot in front of the other.... Just keep doing what the doctor suggests. I had just an hour before hearing my DX, asked God to please take my hand... I told Him I was terrified... My Fear Left That Momment... I was concerned but I wasn't terrified any longer. I told God I would follow Him whereever he led me. He gave me wonderful doctors, nurses, and chemo staff.. He gave me the patience of my husband... who earned his sainthood in my mind. AND he removed all the cancer... I was part of a diabetic cat website when diagnosed... I too as Joachima did had people praying for me from all over the USA. Europe, China, Austrailia, New Zealand and South America.... I was not afraid to ask people to pray, many just offered, and I can tell you for certain.. heading into surgery that day... I felt their prayers surrounding me like a warm blanket... or perhaps like many arms around me.... loving me.

      I have fingers that remain a little numb, I have feet that are a lot numb, and sometimes painful. But there are days I don't even think about cancer.. not many as I was so grateful to find this site for us to share our knowledge and prayers with those coming along now. (((Hugs))) to you and your family! I'm here if you have questions.

      about 4 years ago
    • TerryHoward08's Avatar
      TerryHoward08

      I can't thank you enough for connecting with me and sharing the details of your journey. This helps with gathering more knowledge of what lays ahead. The unknown is what makes me (and anyone else) assume the worst.
      I was diagnosed stage II on a Thursday and had a complete hysterectomy 10 days later (mainly me pushing to get it done and over with). My husband also, has been a pillar for me and since I'm still receiving from the hysterectomy, he is able to be home with me. I have my first post surgical appt. next weekend I know we will be talking a out starting chemo. But all the . support I am receiving, is definitely helping me move forward with confidence rather than fear.
      I work full time, and need to continue (in some capacity)to keep my health insurance. After your treatments, how long did it take before you felt able to do your 'regular' daily activities?
      Thank you for reaching out to me. You are one more blessing than has entered my life :)
      Terry

      about 4 years ago
    • Donna1943's Avatar
      Donna1943

      Yes, I lost my hair but that was nothing compared to the other side effects. I am looking for a wig. Very hot during the summer but would be nice to look different when I to special events. Two Chemo: Taxol and Carboplatin Read my7 side effects under my name.

      about 4 years ago