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    tjclaw1 posted an update

    Follow-up apt with orthopedic oncologist tomorrow. Getting first set of follow-up xrays to make sure there are no changes in enchondromas after discovery of new one in left proximal humerus 4 months ago.

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    tjclaw1 wrote on peteranderson's wall

    I cannot imagine how difficult it would be having a child with osteosarcoma or treating a child with cancer. Absolutely heartbreaking. I am an adult with multiple enchondromas of the left distal femur and left proximal humerus. My orthopedic oncologist is taking a wait and see approach (xrays every 3-4 months & I've only had 1 set of xrays). He thinks they look benign based solely on one set of xrays, although the one in my humerus is larger and concerning to me. I've read that enchondromas and chondrosarcomas can look similar on xrays, I'm thinking more tests should be ordered due to pain in my arm (CT Scan?), but he thinks the pain is impingment from a bone spur - I think it is bone pain. It is so frustrating and frightening to wait and see, especially when I have two young children to raise. How do you know when to trust your doctor and when to trust your gut feeling and get another opinion? I'm going to Rush in Chicago, but several other doctors have commented that they've never seen an "enchondroma" that looks like the one in my humerus. Unfortunately, I don't have a good feeling about this, but I hope I'm wrong.

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    tjclaw1 shared an experience

    Celebration (Other): Orthopedic oncologist said the bone tumors look benign. He wants to see me every 3-4 months for a year for x-rays to make sure there are no changes.

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    tjclaw1 posted an update

    First appointment with orthopedic oncologist tomorrow. My stomach is doing flip flops. Scared that they are going to find more bone tumors.

    2 Comments
    • Staci1219's Avatar
      Staci1219

      I know you're scared about going because you're afraid they're gonna find something...I know that feeling all too well, when I have to go for my mammograms I feel the same way and I've been having them since the age of 29 because my mom was diagnosed with breast cancer. I've had to have the diagnostic kind too...I've had to have 2 biopsy's done 1 in each breast and had to play the waiting game and pray. I decided to put it in God's hand's and give it to Him so I could stay calm. Good luck tomorrow, and let me know what you find out. I will be praying for you. Hang in there and keep your head up :). If you need me, I am here for you.

      over 4 years ago
    • DaveWaz's Avatar
      DaveWaz

      Good luck tomorrow and please know that no matter what happens - we are all here to support you. Our thoughts are with you.

      over 4 years ago
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    tjclaw1 started following

    User: Molly72

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    tjclaw1 wrote on Molly72's wall

    I am so sorry you had to spend Christmas in the hospital alone. I know how it feels to be fighting for your life and feeling very alone. I'm glad you are home now and I will pray for your recovery. If you EVER need someone to talk to, I hope you'll reach out. I'm here if you ever need anyone to talk to.