• tlc's Avatar

    tlc wrote on Skylex's wall

    Skylex, I am so sorry you are so very young. I read you have children. I still have a daughter in college. I don't know if I should have her move closer to home. She is now six hours away. That is one of the reasons I wonder how long he may have. He will never be off chemo and I don't believe surgury is an option either. I am so scared he has been my soul mate for 26yrs. He is still working, he is afraid to stop for fear of losing his insurance. At this poin tit is working out for him,it keeps his mind ocupied. My thing is I want him to do what he wants to do with his time.. Sorry now I am just rambling... Thanks tlc

    1 Comment
    • Skylex's Avatar
      Skylex

      Feel free to rant anytime. Cancer sucks there's no getting around that. I could sit around all day and have a pity party but what good would that do. I in all reality unless God performs a miracle probably do have many more years left. I struggle with that reality daily so I try each day to make some kind of memory with at least on of my kids. I tell them constantly how much I love them. I say yes a lot more. I don't sweat the small stuff. I try to squeeze in lessons in life that I would want them to know even if normally I wouldn't bring it up till there teen age years. I quess what I'm trying to say is live each day to the fullest. No one is promised tomorrow it's just that cancer makes us more aware of it. God bless. Gloria

      about 4 years ago
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    tlc wrote on Jray's wall

    My Husband has dieabities (Mis-spelled I am sure). The are having a hard time controlling it. He was doing real good with his diet but has sence gotten frustrated. And has been cheating. I give in once in a while yet try to give in once in a while. We still have a daughter in college and is six hr's away. There are where my questions come in to play should we incourage her to come home and finish school. She is alwys asking me how dad is. So these are questions to for her as well as me. And I have no answers for her.

    1 Comment
    • Jray's Avatar
      Jray

      Boy that's a tough question. For your husbands diabetes you should consult your family dr or an endocrinologist. They can help with that alot. Keeping a daily log of his blood sugars 3 times a day for 2 weeks would help too if you don't already do this. That will assist the doc in how to best treat the diabetes. My children are are in their 30's have children and very demanding jobs. Plus they live an hour and a half away. They both do what they can but its very little because of their situations. Perhaps you need to have a heart to heart with her and get a feel for level of anxiety about this. Ask her what she thinks about coming home and finishing school there. I'm sure you're like me and really want her near right now. But at the same time you have to respect whatever.decision she makes. There are many new ways to keep in touch now like Skype and face time from your I phone. Always be honest with her about her dad's condition too, that way she will be able to decide now or later whether to come home or not. My daughter asked me if she should take a leave of absence and I told her... Not just yet, but hold onto that idea for the future. She seems to be comfortable with that..
      I hope I've helped in some small way. My heart goes out to you. It's a tough situation to have your lovely daughter so far away while you and your husband are battling cancer.

      about 4 years ago
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    tlc asked a questionColorectal (Colon) Cancer

    Required: Question Title

    6 answers
    • SandiD's Avatar
      SandiD

      http://www.cancer.org/treatment/caregivers/index

      You might check these articles out.

      about 4 years ago
    • Kathy's Avatar
      Kathy

      My emotions have been helped with a little bit of medicine but I have also been benefiting from talking with a social worker that specializes in treating cancer patients and their families. It does help to be able to talk about all of this. The whole cancer experience just makes us so vulnerable and the emotions are just so raw.

      about 4 years ago
    • Peroll's Avatar
      Peroll

      tlc, My wife also has both arthritis and fibromyalgia and has been my caregiver for 8 1/2 years. She has done just fine in caring for me. She is here on WhatNext as Queen Tatainia, look her up. The key is to be sure to take care of your self and not let your health issues suffer too much. Make sure you take time for yourself so that you don't burn out on his care. I know that sounds hard to do he will notice if you get too tired and need time off. Also let him do what he can for himself, don't try and do everything for him. Let him help you some times as you need it. Barb is right that you should talk to your Dr about an anti-depressant med as they can help you cope with everything on your plate. Good Luck and let us know what else we can do to help.

      about 4 years ago
  • tlc's Avatar

    tlc asked a questionColorectal (Colon) Cancer

    My Husband, has colon rectal lung liver andlympnoid cancer can someone please be honest with me about his life expectency.

    11 answers
    • Jray's Avatar
      Jray

      I had the same question go thru my mind. I asked to speak with my husbands oncologist and she replied in a letter to me the same day ( I did this while he was doing his chemo). Anyway it was there in writing,the stage, percentages of the chemo being effective and his possible life expectancy. The news was not good but at least I had some perspective. My husband has diabetes, renal failure and heart failure on top of the cancer so I know at any given point things can " go south" you just have to take each day as it comes. And let me be the one to say it really sucks but try to hold on to your faith and even when you two have bad days...and you will! Try to be strong and forgiving. I often ask God to help me be all he created me to be :)
      My heart goes out to you.

      about 4 years ago
    • carm's Avatar
      carm

      tic,
      I am an oncology/end of life nurse and just because your husband has cancer cells in these places does not mean it is a death sentence. Mets to the liver and lungs will usually clear easy with the right therapy. I would expect to see cells in the lymph nodes. An average tumor the size of an inch will slough off between 3 to 5 million cells every 24 hours. They are corralled by the immune system and brought to the jail or lymph nodes to be carried away and destroyed by T cells. I don't know what treatment your husband is on or whether his condition has has affected other co-morbidities, but if he has a will to live then the choice is his regarding his expectancy. You have to look at this disease from the nature of biology and how it behaves at a cellular level. Most mets that go to the liver are lesions on the outside surface and mets to the lung tend to stay in the middle or upper lobes and clear easily. Believe in him and his strength to push forward. I am always here if you have any questions or need a supportive ear. Best of luck to you, Carm RN.

      about 4 years ago
    • Skylex's Avatar
      Skylex

      I have basically the same cancer as your husband. I am inoperable and have been on chemo with no break since October 2012. I was told once from a surgeon to go home and prepare for the end and that I pry have 3 to 5 years if I'm lucky. I refuse to accept that and plan to be here for at least the next 20 years. Only God knows when your time on earth is up!! God bless!! Stay strong attitude is half the battle.

      about 4 years ago
  • tlc's Avatar

    tlc shared an experience

    Oh No (Cancer has spread/Metastasized)

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    tlc shared an experience

    Drug or Chemo Therapy (Chemotherapy)