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    tmlovett shared an experience

    Procedure or Surgery (complete hysterectomy ): September 2013 - After months of issues with my cycle and chronic pain, it was finally decided that a hysterectomy was the best option. They encountered more bleeding than expected during the procedure and so I ended up with 3 scope incisions as well as a 4-5inch incision on my abdomen.

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    tmlovett shared an experience

    Clinical Trial (Merk PD-1 ): Start May 20, 2013

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    tmlovett shared an experience

    Procedure or Surgery (Port Placement): March 16, 2013: Port placed to receive more treatment and blood draws

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    tmlovett shared an experience

    Decision Point (To continue with treament or not): Time to decide if I sign up for the PD-1 clinical trial or just be done with treatment.

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    tmlovett wrote on Jstpchy00's wall

    Hi Jstpchy00 :)
    Some of your experiences sound very familiar to me. I had HORRIBLE reactions to anesthesia and it took about 6 surgeries before I got a Miracle Anesthesiologist! She read all my previous notes and listened to everything I had to say about my reactions. She came back with an "outside the box" plan for me and it worked wonders! She even called me to check on me once I was admitted :)
    SO, if more surgery is ever in your future (which I would never wish upon anyone!) be sure to give DETAILS about your experience. They will listen!
    Good luck with whatever is next in your plan of care and Congrats on the wedding while in treatment!!!
    tiffany :)

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    tmlovett asked a questionSkin Cancer - Melanoma

    PD-1 Trial?

    4 answers
    • carm's Avatar
      carm

      Tmlovett,
      This study does look promising and to date there have been some favorable reviews in peer reviewed publications. I think that your doctor has your best interests at heart and I think it is noble of anyone who joins a study in the hopes of advancing medicine. It it were not for study participants, I don't think we would have half of the meds that are on the market today. I have attached a link regarding the study. I hope this will help answer any questions for you, Carm RN.

      http://www.sciencedaily.com/releases/2012/06/120602134835.htm

      over 3 years ago
    • Dick_K's Avatar
      Dick_K

      I do not have any first hand PD-1 information to pass on but I can echo the comment that you will probably get a higher level of care as part of a clinical trial. I am 36 months into a phase II trial even though the drug I’m on, Zelboraf, got FDA approval in August 2011.

      That having been said, there is a very good webinar about PD-1 at the Melanoma International Foundation. If you go to the following link, on the top banner you will find a drop down box for a number of webinars; PD-1 is one of them.

      http://www.melanomainternational.org/

      Regardless of your PD-1 decision, I would like to wish you the best of luck. There are just too many important events coming with your children and you need to be there to enjoy them.

      over 3 years ago
    • tmlovett's Avatar
      tmlovett

      thanks to all of you. I appreciate the info and links. I will find out at my next PET/CT in about a month how effective or ineffective the Yervoy was. I'm not optomistic as I can palpate all the tumors and then some from the start of treatment. Considering this clinical trial is for another immunotherapy I'm concerned that it's not going to be effective for me as I'm already not responding to the Yervoy. I'll have my slew of questions for my doc in 3 weeks! thanks again :)

      over 3 years ago