• Toby's Avatar

    Toby asked a questionBreast Cancer

    Metastatic Breast cancer that is now in the Spine . What is the treatment and outlook for this ?

    9 answers
    • suebo's Avatar
      suebo

      I am so sorry to hear that. My breast cancer has metastasized (?) and I am going to have to go in for more tests to find out where. I have been "googling" to find out more information and learn more about this subject. Also there are a lot of good books out there that will educate you more than any Dr -- they have time restraints and can't sit and talk to each patient like we really need them to.

      about 4 years ago
    • AlizaMLS's Avatar
      AlizaMLS

      Dear Toby, It's true as Suebo says that a doctor, an oncologist, can't spend unlimited amounts of time on your case because you're not his only cancer patient. He's not being insensitive, he has only a certain amount of time to alot to everyone (I know from being the ex-wife of a physician). However, from being a Medical Librarian, I can tell you that Google, while it does have a lot of information, does not posess the wisdom of the universe as a medical resource (and your oncologist has spent years studying yours and many other types of cancer).

      Books that you may find should be published by an authoritative source, i.e., The Mayo Clinic, Johns Hopkins, Memorial Sloan Kettering, etc. (Remember I'm a Librarian-authoritative sources are key for us!!) If you read something written by a patient with your particular type of cancer please realize that that was her experience and does not have to necessarily be yours!

      You have my best wishes,
      AlizaMLS

      about 4 years ago
    • sweetrose's Avatar
      sweetrose

      Toby, I got that same info from my ONC 3 weeks ago. His response: let me spend some time going over your file and decide the best treatment. If I have not called you one week from today, you call me. I called him and he had a plan. He said he needed me to come in to do lab work, ust to verify estrogen levels. He got lab results within 24 hours, offered to send RX to pharmacy for Zeloda and Tykerb. He said if your insurance will not cover, I have a back up plan. Needless to say, but somehow they were FEDEXed to my house from a pharmacy 300 miles away. (yes I got a call they were coming.) ONC said great, Do not take until you come see me again. I have been holding them for 4 days, I go in today to get "training" for them--to find out both had been filled wrong. The bottles together said take 9 daily, OOpps! should have been 13 daily. So I had only receive a week supply of 1 and 3 weeks of the other. So ONC spent my appt dealing with pharmacy.

      I was so glad that I had taken the time to research each RX on Cancercare before I went to see him. I felt so much wiser and knew what to ask, rather than just being blindly told to go here, do this.. He said start them whenever I am ready, preferably within the next 4-5 days. WHAT? I get an option? WOW!! Maybe Monday--But first enjoy my weekend!

      I will let you know.

      about 4 years ago
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    Toby shared an experience

    Procedure or Surgery (Double Mastectomy)

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    Toby shared an experience

    Oh No (Cancer is back/Recurred ): Was breast cancer now it is in her Spine and not sure where else

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    Toby started following

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