• TomLand's Avatar

    TomLand started following

    User: CancerNews

  • TomLand's Avatar

    TomLand shared an experience

    Decision Point: Following failure of the Gemzar treatment we discussed several options. I was all set up to try the Folfirinox treatment, another type of chemo that is proven effective with my type cancer. It also has much stronger side effects.

    The next morning the Doc called with some new alternatives. One is only available at Sloan-Kettering at the moment but sounds like it has good promise. Doc expects it to be available locally in the next 4 to 6 months. If it continues to show good promise I may switch to it when available locally.

    The third good choice is another study similar to the previous one only it is a blind study - I will not know if I have the test drug or not. The base drug is Capecitabine. This is FDA approved for colon and breast cancer but not for pancreatic - what I have. I know I will receive that drug. It is in pill form and is noted as having small side effects. This has been used some for Pancreatic cancer with good effects. The variable drug is Ruxolitinib, a new drug that is not approved by FDA for any treatment. It also is in pill form with few side effects expected.

    I decided on the third choice which allows me to stay at home as well as has good promise to kill the tumors.

    1 Comment
    • FreeBird's Avatar
      FreeBird

      The third choice listed is exactly the clinical trial offered to my dad after failure of Gemzar. TomLand may no longer be around in body. But he's still here in spirit, helping people.

      about 4 years ago
  • TomLand's Avatar

    TomLand shared an experience

    Oh No (Cancer has spread/Metastasized): Scans at the end of my 3rd series of Gemzar treatment show it has lost effectiveness. New tumors showed up in bones mostly, vertebrae, hips and ribs to the extent one rib has fractured. This has brought on intense pain in my back and great difficulty just getting around.

    1 Comment
    • nomoretears' Avatar
      nomoretears

      My heart goes out to you. You, without a doubt, have to be the bravest person ever, or the stubbornest! Maybe some of your Kentucky orneriness coming out. I would advise anyone who ever thinks about giving up to read your story. By sharing your experiences, you have helped Pete and me feel more positive, even when there seems to be nothing to be positive about.

      Thank you for being you , and God Bless you!

      Linda

      over 4 years ago
  • TomLand's Avatar

    TomLand wrote on nomoretears's wall

    Oh - what a wonderful person you are to hang in and continue to help him :)

  • TomLand's Avatar

    TomLand wrote on nomoretears's wall

    I grew up in Sloans Valley, KY, not far from Russell Springs. I know folks can be a touch cantankerous :) I think most of us immediately throw up a wall after diagnosis.

    I can give him three things to be happy about -
    1. CATS won the national championship!
    2. His cancer was discovered early enough that surgery was possible - mine was already stage 4 with 2 tumors on the pancreas and 7 on the liver.
    3. He has wonderful people like you who have put up with his BS and are still willing to help him.

    Tell him it is time to quit feeling sorry for himself and time to recognize who his friends are. That may be better coming from his parents, but you may be the one that has to deliver the message. Sounds like he is short with everyone so y'all have to stick together & present a united front.

    2 Comments
    • nomoretears' Avatar
      nomoretears

      Just thought I would check how your 6 month scans, went-- hope everything turned out well.

      My cantakerous boyfriend is now feeling like a lucky guy afterall. I shared your story with him, as well as a few more on this site- now he is getting some idea of how much worse his situation could be, and it has actually helped him. I think some of the intitial shock is wearing off and things are becoming clearer to him now. He is not such a bear with me anymore either. Thanks a million!!! It is amazing how much help a few words can be.

      We will be starting chemo/radiation this next Monday. We are going to use Xeloda orally while doing radiotherapy. With any luck there won't be too many horrible side effects.

      Thanks for all your help!

      Hugs and prayers sent your way!
      Linda

      over 4 years ago
    • Blue's Avatar
      Blue

      Tom, I am wondering how you are doing. I hope you are managing well and feeling comfortable with decisions and options. Many times I realize how surreal our lives become with the day-to-day concerns about our cancer's behavior and how we can integrate it into a halfway normal life.

      over 4 years ago
  • TomLand's Avatar

    TomLand wrote on Blue's wall

    Blue - I am male, age 61, diagnosed with pancreatic cancer stage 4 about 6 months ago. Feel free to look over my site on here. I have done chemo only but it is working to this point. Glad to discusss/share.

    1 Comment
    • Blue's Avatar
      Blue

      Thank you, Tom. I also had Gemzar infusions. Didn't shrink the tumor but stabilized it. Hasn't spread to other organs or lymph nodes. Did you say you had surgery?

      over 4 years ago