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    trinas2001 shared an experience

    Oh No (Misdiagnosed): I am just recovering from surgery and the surgeon said that there was something suspicous in my bladder so after going to the urologist they say I have a mass in the back of my bladder it is either the primary or a secondary cancer so now I have to go for outpatient surgery to get a biopsy. My chemo and radiation was supposed to begin in 4 days and end on March 9th Now we are starting all over again and I am angry. I feel like they should have done this during the surgery and done more tests. I no longer trust my doctors and do not know what to do.

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    trinas2001 shared an experience

    Procedure or Surgery (Surgery): I had a hysterectomy a lymphoctomy, and a systosomy. They took out my lymph nodes and looked around in my bladder. The surgery went well and i am hard headed so I was up walking the same day off surgery home in three days back at work part time in 18 days. Have some pain in the nerves that were clamped off and my tummy is numb and and very nervy feeling but all things considered it went well.

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    trinas2001 asked a questionCancer of Unknown Primary

    I feel like I am not getting enough information I go for surgery in 10 days and I would just like to talk to someone else that went through

    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I had a complete hysterectomy in August. Sounds like your procedure is more complicated than mine. No lymph node involvement, but they did take the omentum, the fat layer over the abdominal organs. No complications w/surgery. Surgery was on a Thurs & I was release on Sunday. Since I live alone, I stayed w/my best friend & her family for about 4 days, until we both felt comfortable I could manage stairs on my own & figure out how to inject blood thinners my surgeon had me on for 30 days. 6 weeks off work & on lifting restrictions. I hope that info is helpful, as I'm not sure what kind of info you are looking for. Surgery for me wasn't a big deal. Cancer is often staged after surgery. Because of the omentum involvement, I have stage IV uterine cancer, determined after the procedure.

      over 4 years ago
    • nancyjac's Avatar
      nancyjac

      What information are you lacking? It sounds like you have quite a bit of detail regarding the plan for your upcoming surgery. What comes next will depend in great part on the results of your surgery.

      over 4 years ago
    • Lirasgirl33's Avatar
      Lirasgirl33

      Hi trinas2001. I had a radical hysterectomy & oopherectomy with lymph node dissection and removal earlier this year. I also wasn't staged until after the surgery. Please let us know what type of questions you have.

      If you are unclear about anything having to do with your particular surgery I would suggest making a list of all the questions you have and speaking with your doctor about it. Take someone with you as having an extra set of ears is always a good thing. This will shed light on a lot of things and can take some of the fear away. Knowing what you're in for is always something we as cancer patients like to be able to know. Of course this isn't always possible.

      over 4 years ago
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    trinas2001 shared an experience

    Oh No (Diagnosed): Diagnosed with Squamous cell Carcinoma unknown primary going to iNDIANAPOLIS Jan.8th 2013 to have surgery having a complete hysterectomy and my lymph nodes taken out on both the right end left lower sides

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    User: GregP_WN