• GregP_WN's Avatar

    GregP_WN wrote on Tspitzley63's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.

    If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    Thank you for joining us, if you have questions please contact us.
    4X Survivor
    ACS Voice of Hope

  • JaneA's Avatar

    JaneA wrote on Tspitzley63's wall

    Welcome to WhatNext from a fellow Stage IV rectal cancer survivor. I, too, lost my job, but I was old enough to take my Social Security - it was the only time that I thought being older was an advantage. I am fortunate to be NED. Dx in October 2014 and had APR surgery with colostomy. You are not alone.

  • Tspitzley63's Avatar

    Tspitzley63 shared an experience

    Decision Point (To have surgery and lose my job or take a year to wait and build up FMLA time before surgery): I chose to go back to work so I didn't lose my job and my insurance. I need up with a bowel blockage and after surgery I was terminated anyway because my recovery took longer than expected due to two additional admissions to hospital for bladder/kidney infections.

    1 Comment
    • lo15's Avatar

      This is so sad....don't even know what to say

      3 months ago
  • Tspitzley63's Avatar

    Tspitzley63 shared an experience

    Procedure or Surgery (pelvic exenteration): This is a total removal of pelvic organs. I was lucky enough to keep.my bladder. But since have had a tumor removed from my bladder. And a matasis to a nodule in my lower love of my left lung.

  • Tspitzley63's Avatar

    Tspitzley63 started following

  • Tspitzley63's Avatar

    Tspitzley63 shared an experience

    Loss (Job): Lost job while undergoing treatment