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    tstrazz shared an experience

    Procedure or Surgery (Simple removal surgery ): I had a new 'mole' on my leg, which grew rather quickly and was a bit red. I had it removed in January 2014 and biopsied. From what I hear, this will not be my last.

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    tstrazz asked a questionThyroid Cancer

    Does anyone's blood work not reflect how you're actually feeling?

    6 answers
    • Diansky's Avatar
      Diansky

      To add more to my response... I do like kalindria's idea of keeping a log of your symptoms with some frequency throughout the days. It helps you and the dr to see patterns, etc. And, it will be more accurate than your overall recollection when you are asked to describe your symptoms/concerns. Funnily enough, keeping a log gives you a place where you can feel some control and react positively to the things that seem linked to the problems.

      over 5 years ago
    • cam32505's Avatar
      cam32505

      So, I had thyroid cancer Sept 2012, treated by Dec, 2012. It is now June, 2014, and my blood has never been normal since I don't have cancer. So, I asked my endo about this. He explained that they calculate the dosage based on weight, which means mine should be 180 mcg (they started me on 200 mcg). Well, now I'm down to 125 mcg, and I feel closer to normal. Waiting a couple of weeks to let this dosage get into the blood and having it tested again. It takes 8 weeks every time they change the dose to see if it's right. I'm hoping this is it, because with the medicine too high, I couldn't sleep, yet I was tired all the time.

      over 5 years ago
    • Newman3's Avatar
      Newman3

      I only have the left lobe removed due to cancer. The doctor thought it might be better to have some natural hormones so he gave me 88 mcg. I believe this was 2007 or 2008. Well since then I've had horrible sweats , can't sleep w/o sleep aid, & just never felt like I had enough energy. . May 2014 had a monthly ultrasound & it shows nodules so, here we go again with biopsy which are unpleasant ( no meds so she could get a pure reading for pathologist) From reading others experiences I think it may have been better to remove all of the thyroid & have RAI to kill all cancer cells. It was 2009 when I developed carcinoma ducal in-situ in left breast & six months later it cane back. Fybermyalgia is another painful experience that has reared it ugly head this past month.

      over 5 years ago
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    Side Effects (So many side effects): I encountered a number of side effects and was rather naive to think one simple hormone replacement pill would make me 'normal.' Excessive weight gain, hair loss, muscle fatigue, tiredness, brittle and discolored nails, dry skin, excessive menstrual bleeding and cramping. It look a few years, but I figured out I needed to conquer each side effect individually. It's difficult since I still don't feel my Synthoid is the correct dosage. My side effects fluctuate often and I never feel like I have enough energy or stamina. NEVER! Even today. I just wish someone would have told me the long-term and permanent side effects.

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    • Newman3's Avatar
      Newman3

      I too never expected that the older I get the more my side effects change. I don't have energy but have a difficult time falling a sleep without sleep aid. My bones ache so bad. I have pains in my abdomen/stomach. I've been having headaches lately. I don't even want to get out of bed. My dream was to travel at retirement but can't even get out of bed some great retirement. I've tried to get an appointment to see my doctor but can't get in until July 7th.

      over 5 years ago
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    Side Effects (Depression/Anxiety): Depression...meds and sessions. I never thought I would be in this situation and I hated that I went on Lexapro to shield my feeling and roller coaster emotions. HATED IT! I hated feeling numb. I hated feeling the pain. I hated what cancer did to me.