• Txlady's Avatar

    Txlady shared an experience

    Drug or Chemo Therapy (Maintenance or consolidation chemotherapy): Began maintenance Avastin. The only problems I continue to have are recurrent UTIs. We don't know if this is a side effect or some other issue. Will possibly referred to a Urologist.

    1 Comment
    • ecastricone's Avatar
      ecastricone

      Keep the faith Txlady! I, too, have recurring UTIs. After almost a year, I saw a Urologist. She and my Oncologist Nurse Practitioner put me on a daily dose, actually twice daily dose of Ceflixin and this has done the truck. I've used it for 2 years now and have not had aUTI since. Lots of water is the trick too! Good luck and God Bless you!

      8 months ago
  • Txlady's Avatar

    Txlady shared an experience

    Oh No (Legionella Pneumonia): After 5 cycles of chemo, I contracted Legionella Pneumonia (legionaires disease). The doctor thought I got it due to my compromised immune system. It is not passed human to human - you get it from contaminated droplets of water from hvac units or misters/sprayers. Since I only had one scheduled cycle of chemo left and my CA125 was normal the doctor decided to skip the last cycle and start maintenance therapy, so I began maintenance with Avastin

  • Txlady's Avatar

    Txlady shared an experience

    Oh No (Cancer is back/Recurred ): In July, 2018 CT showed pulmonary nodule consistent with platinum sensitive recurrence. I had a small nodule (about the size of the tip of my little finger) on my diaphragm. Since my CA125 had doubled the last 2 checks, my doctor felt certain this was a recurrence and I needed more chemo.

  • Txlady's Avatar

    Txlady shared an experience

    Celebration (Remission): In March, 2018 I was declared NED (no evidence of disease). Looks like treatment was successful.

  • Txlady's Avatar

    Txlady shared an experience

    Oh No (broken arm): On my first outing after my surgery (other than doctor visits) I fell and broke my arm. As if cancer is not enough!

  • Txlady's Avatar

    Txlady shared an experience

    Drug or Chemo Therapy (Chemotherapy): Began 6 cycles (1 cycle every three weeks) of Carboplatin/Gemcitabine/Avastin. Had to discontinue the carboplatin and change to oxaliplatin on cycle 2 due to allergic reaction.

    2 Comments
    • macfightsback's Avatar
      macfightsback

      Hi Txlady,.
      I am happy for you. I did not tolerate chemo very well. (I have had it in 2015 and 2018). What stage are you? I am stage 3 C, late stage. I had 6 cycles of Carboplatin and Taxol with my initial chemo and 6 cycles of Carboplatin and Gemzar last year. I required 4 blood transfusions in 2015 for severe anemia and 5 transfusions last year for severe anemia. My immune system was compromised too. Had to be put on isolation twice for low WBC's last year. Fatigue was a big problem, there were many days when I struggled to go grocery shopping or take garbage out. There were other side effects too which I will not list, two were irreversible, I consider them my "souvenirs". Since I work 12 hour shifts in Critical Care as a registered nurse, work was not possible or safe. (There are many patients with infectious disease in my unit.). I have heard how some people do well with chemo and have wondered if they were diagnosed at an earlier stage, are they much younger (I am 61) or if somehow they just tolerate their chemo better than others. Thanks for sharing.

      8 months ago
    • Txlady's Avatar
      Txlady

      Hi macfightsback- Thank you for your input. Yes, we are on the same regime. I had the carbo/taxol and carbo/gemzar/avastin. I too had to have blood transfusions and was hospitalized Nov 2018 w/Legionaires Pneumonia. They were pretty sure it was due to my compromised immune system. My job is an office job, so it was not all that taxing physically (except for the days I felt like I couldn't lift my head from my pillow) I just received my NED diagnosis in December, and am currently on maintenance (every 3 weeks) on Avastin. Hoping it will give me a long remission! My first remission was in 7 months of my surgery and post surgical chemo. I think the carbo/taxol regime is very hard. I usually did chemo on Thursdays, then was in bed Saturday-Tuesday and pretty wiped out the rest of the week. Seemed like the instant I started feeling somewhat normal it was time for another round!. I am in remission now and have started feeling much better if it weren't for the horrible joint pain. My kidneys are compromised due to the chemo and I am unable to take any anti-inflammatory drugs. Some days I can barely walk. Now that I am through w/chemo I am going to try to get some help with that. Thanks for sharing. It's easier to get through this when you can talk w/others that have walked the path you are walking.

      8 months ago