• Unidexter's Avatar

    Unidexter posted an update

    I got put onto Hospice 12/26 or so and taken off 1/23. My doctor says I have stage 4 lung cancer since 11/15/12, Hospice says they don't have any evidence of that and I don't qualify for Hospice. Who's right? Who cares? I have my aches and pains and am weak from lying around but other than that I'm ready to ride. I need a dicipline pill that will get me to exercise more than once in a row.

    2 Comments
    • FreeBird's Avatar
      FreeBird

      Did the doctor sign an order for hospice? How about getting copies of the pathology and radiology reports, and x rays and scans?

      about 3 years ago
    • GregP_WN's Avatar
      GregP_WN

      Freebird has it right, all it takes to be on Hospice is a doctors order for it. The technical definition the doctor goes by is that a person is not expected to survive their cancer/disease longer than 6 months. Whether you do or not doesn't matter, the doctor can renew the order. If he doesn't renew you will be taken off. This should be easy, the doctor either says you do or you don't. Check with them.

      about 3 years ago
  • Unidexter's Avatar

    Unidexter posted an update

    my GP okayed me for hospice but they are about to reject me. There is no concrete information relative to diagnoses or stage. In spite of the surgeons report after resection of my lung. The surgeon diagnosed a tumor 4cm across and removed a mass 19 cm, Subsequent PET found no matastasis or lymph node involvement, Nobody will say that I do or do not have cancer so I guess thats good news although I like the treatment I'm getting in HOSPICE!!!!!!!

    Unidexter

    3 Comments
    • tkantor's Avatar
      tkantor

      Hello Unidexter,

      I am 53 and a nsclc Stg IV 6 years survivor. I do not understand why you are in Hospice. Is it because of your age or your heart concerns? After your MI, did you restart your chemo? I just cannot wrap my head around why Hospice. I do not mean to be disrespectful, just curious. Wishing you well sir.

      Teri

      about 3 years ago
    • figaro's Avatar
      figaro

      At this time it would seem u do not have visible signs of cancer. At some point in the future that may or maynot change. Hospice is for people with terminal disease. That is not u. I do understand you love the care but it is not suported by your diagnosis now

      about 3 years ago
    • GregP_WN's Avatar
      GregP_WN

      You can always get Hospice again if your condition changes. The only requirement is that your doctor must say that your prognosis is 6mos. to live or less. That figure may last longer, it did with my Mother she was on it for 10 months. We wish you well.

      about 3 years ago
  • Unidexter's Avatar

    Unidexter wrote on treeman1941's wall

    Since my journey is so similar to yours, we're about the same age, and know the beauty of living in Northern CA (I live in Berry Creek, above lake Oroville) I'll ask -- Are you still not smoking? I quit right wen I got the awful "you've got lung cancer" phone call. Miss it every day.
    Unidexter

  • Unidexter's Avatar

    Unidexter wrote on BrownCounty's wall

    Keep the shiny side up, wind at your back. I've always wanted to tour the south on a motorcycle, only done the whole west so far. Sold my HD when diagnosed, bought a Suzuki and put a Vanguard trike kit on it (am an amputee) because I didn't have the strength to hold the HD up any more and can't afford HD TRIKE. I should have just bought a sidecar for my dyna.
    Bfn Unidexter

    1 Comment
    • BrownCounty's Avatar
      BrownCounty

      If you get the chance, the Blue Ridge Parkway is beautiful. Cancer Smancer - go!

      over 3 years ago
  • Unidexter's Avatar

    Unidexter wrote on geekling's wall

    Hi Geekling,
    Got any tips on how to "take up meditation and yoga"? I live remotely, in the mountains in northern California, no "groups or centers" that I can find. My biggest difficulty is doing anything different in the morning, which would be a good time to do this stuff, huh?
    Thanks, Unidexter

    2 Comments
    • geekling's Avatar
      geekling

      A drop drop drop of water regularly will eventually erode the greatest mountain. Start off very simply. Place a full glass of water by your bedstand before you lay down for your rest. When you awaken, drink it down completely and then get out of bed for whatever. I keep a list of things to do in my bathroom...really ... netipot, brush teeth, wash face or shower, juice yadda yadda .. once I can get the juice down, I can keep going long enough to exercise or what ever is next. I met a yoga instructor on the way up to Mount Ranier. They are everywhere. :-) Seriously, there is someone near enough to you who knows "therapeudic" or chair yoga. What sort of therapy is available at the hospital where you treated? The long and short of yoga is to simply relearn to breathe. My favorite yoga instructor in the world, Leslie, even put out a DVD. Truly, however, it is recommended that you attend a class with a great live instructor (who can properly position your body without causing you pain) before you follow a DVD. Start with the water and see how that changes things up. Then write again, please. You should notice a difference right away and be startled by day two or three. :-)

      over 3 years ago
    • geekling's Avatar
      geekling

      You live, pretty much, in G-d's country. Do you take walks? Are there still chemtrails overhead?

      over 3 years ago
  • Unidexter's Avatar

    Unidexter asked a questionLung Cancer

    what is likely to come next?

    5 answers
    • Peroll's Avatar
      Peroll

      I think maybe buying the Harley is a good idea!!! Congratulations on being cancer free. I know the feeling when you wonder what comes next. If there is no reason for more treatment in your case what will come is a period of close monitoring for any evidence that some of those nasty little cancer cells have snuck away. It is important to keep up with the monitoring so that anything is found early when it is easier to treat so I would not plan the around the world Harley trip for a while.

      I do recommend that you try and go back to life as close to normal as you can get. It may never be the same as it was before cancer but the more normal you can get the better.

      Good Luck and be sure to post a picture of the Harley!!!!

      over 3 years ago
    • JennyMiller's Avatar
      JennyMiller

      Live each day to the fullest --- and take some nice trips on that Harley!!!!

      over 3 years ago
    • BrownCounty's Avatar
      BrownCounty

      I too have had a lobectomy and vat. We plan on taking the Harley Road King to Nashville on our 45 wedding anniversary in August. Live while you can, no one knows what tomorrow will bring.

      over 3 years ago