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    UpandUp asked a questionSkin Cancer - Melanoma

    How often does the thought of recurrence cross your mind?

    15 answers
    • cllinda's Avatar
      cllinda

      In the beginning, after treatments were over, I thought a lot of the chance it would come back. But seven years later, I am too busy with my granddaughters to worry about it.

      4 months ago
    • mom2two's Avatar
      mom2two

      I also am out of treatment but still in a clinical trial for about 31/2 yrs now and it will last for 5. I do think about recurrence every now and then, but really try not to let my mind go there. I try to focus on whats ahead in my life and all I still want to do. :)

      4 months ago
    • IKickedIt's Avatar
      IKickedIt

      I'm more than 7 years out and the thought of a recurrence rarely crosses my mind, so I don't worry about it either. But, it took me quite some time to get to this point.

      I am very vigilant about keeping up with my scans and do whatever the doctor recommends. I did, however, decide to cut my ties with my oncologist. He was the best, but the anxiety leading up to my annual check-up was very upsetting (even more than my colonoscopy, which I actually look forward to). He had told me I didn't have to continue with annual visits after 5 years, so after my 5th year, I decided to stop going. I am fortunate, however, to have had a cancer diagnosis which the doctors feel has been completely resolved and that I am cancer-free.

      I have more survivor's guilt than survivor's worry, but I am also not a worrier by nature.

      3 months ago
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    UpandUp asked a questionSkin Cancer - Melanoma

    I am finishing up on treatments, they went longer than planned. I can barely taste some things, and other things taste funny

    • GregP_WN's Avatar
      GregP_WN

      I lost my taste in all 3 of my diagnoses and treatments. And in each case, the taste came back slowly after treatments stopped. It took about a month form most of it to come back. After my last one 11 years ago now, my taste is different. I can't explain it, but some things I just don't care to eat. Things that I used to like.

      5 months ago
    • SandiA's Avatar
      SandiA

      Hi! Congratulations on finishing. What treatment did you take? I am also a melanoma survivor and I had radiation and then immunotherapy. I lost my taste buds on the radiation. Ugh! The only thing I could taste was instant breakfast and root beer. So I had instant breakfast for my meals and root beer sometimes root beer floats for dessert. My tastebuds did return about two to three months after radiation. It was gradual I would try something and it would work so I would try something else and it didn’t work. Eventually I was able to taste everything I did before treatments. For some people they say they change and you enjoy things you didn’t enjoy before. For me personally that did not happen. I still hate my vegetables. Haha! Or at least most of them.

      5 months ago
    • cllinda's Avatar
      cllinda

      It comes back very gradually. In about two months I could eat almost anything I wanted. During chemo, I ate tater tots, French fries, yogurt and fruit snacks and strawberries and watermelon. That's about all I could stand.

      5 months ago