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    valedav asked a questionLeukemia

    Has anyone had an allogeneic stem cell transplant? I would like to learn from other's experiences.

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      valedav

      I am so thankful for the wonderful information and insight you all have provided. If you think of anything else, please add since I am hungry for information. BTW, LisaLathrop, I sure hope I don't get my brother's male pattern baldness!!! :-)

      over 3 years ago
    • Camarillolaw's Avatar
      Camarillolaw

      My daughter went thru a bone marrow transplant 13 yrs ago. Since she was only one, she does not remember anything, and hers was a cord blood transplant. However, I remember most of the procedure and some of her experiences may benefit you. More importantly, there is an organization that deals with BMT exclusively. Try to reach the Blood and Marrow Transplant Information Network (BMT InfoNet) at www.bmtinfonet.org or email them at [email redacted]. The executive director is Sue Stewart and the phone nos are[phone number redacted] &[phone number redacted]. Another thing for you to do is contact the Center for International Blood & Marrow Transplant Research (CIBMTR) at www.cibmtr.org‎. They have a patient resource page as well as a post transplant guidelines for patientss and their drs to follow. Do this now since one effect of the transplant that my daughter went thru is fatigue. Also, remember the first 100 days after the transplant are very important. Hope this helps and if you need anything else please contact me.

      over 3 years ago
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      VickieGelso

      Oh yes, the hair thing...Mine has also come back with my brothers curls...he has really tight curls, but mine is a nice wavy "cute" curl...everyone loves it...and it is so soft, like a newborns...I love it!
      I saw an earlier post from you about "shaving your head"? I did just before the chemo started. Not bald, but very very short. It was easier to handle when it started to come out. And when it did, it reminded me of a dog shedding his coat...painless but messy. LOL

      over 3 years ago
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    valedav asked a questionLeukemia

    Would anyone be able to share their experience with nonmyleoblative (reduced intensity) allogeneic transplant?

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    valedav shared an experience

    Oh No (Will Need Transplant): Due to the mutation of chromosome (del 17p), my doctor told me that I would be referred to a transplant hospital at the end of my treatments as chemo would only be a short term fix. I was referred and had a thorough appointment with the recommendation that since I now feel really good I would return for preparation for a nonmyleoblative transplant once tests show the cancer ihas returned. My siblings were tested and all three of my brothersmatch. This is very unusual as approximately 70% of people do not have a sibling match.