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    VickieK811 asked a questionBreast Cancer

    "Survivorship" date

    17 answers
    • Carool's Avatar
      Carool

      I use my diagnosis date.

      over 2 years ago
    • Bug's Avatar
      Bug

      I use the last date of treatment. I also don't use the term "survivor". I say I was treated for breast cancer.

      over 2 years ago
    • jackieg's Avatar
      jackieg

      Use whatever date you can remember. I always use the day after Memorial Day. That is the day I had my hysterectomy and the day that started the testing for my recurrence.

      over 2 years ago
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    VickieK811 asked a questionBreast Cancer

    Does anyone have problems with their lymphedema diagnoses and treatment plan?

    6 answers
    • Jesse0218's Avatar
      Jesse0218

      Thank you, MelanieIIB! Your info is very helpful and I appreciate it. You've given me some help with your explanation of things.
      I'd been wondering whether it could come and go. Now, I know it can.
      I've never had it in my arm before now either. I had it in my chest and around my side. The NP saw it first and she explained it pretty well to me at the time. But didn't say it comes and goes - at least not that I remember. I do remember her telling me it could spread to my arm. That I can get cellulitis that can land you in the hospital, etc.
      I guess it was in one of those not active stages and spread to my forearm.
      The reason I'm having so much trouble is because of my insurance. The insurance I have has a very narrow base. That's why I had to stop seeing the Lymphedema Therapist I was seeing last year. We are friends on FB and she saw one of my posts and said we'd talk after the holidays. Maybe I should remind her now that things are settling down some.
      I have a health coach through my insurance company who is really helping me find resources too.
      I'd gotten a check from Cancer Care to help with Lymphedema related costs but when they said I didn't have it, I sent it back. My health coach said call them and see if they'll reissue the check. It's being sent back out next Friday.
      I have a very limited income, just my Soc Sec and don't have a lot of savings left either.
      I bookmarked the 2 sites you gave me so I can really read them when I'm not so tired.
      Thank you again for your help!!! I appreciate the information.

      over 2 years ago
    • MLT's Avatar
      MLT

      VickieK811, Jesse0218, I hope you were given exercises and massage techniques to use. I was also taught how to do the chevron wrap when my arm and hand were huge. There is also a custom made nighttime sleeve that helps a lot. Mine is made ny Tribute. I have noticed that treatment is so much better at a breast center than the one local lymphedema therapist . Yes, all doctors need more education in this area. Some are starting to put sleeves on patients right after surgery. I had extensive reconstruction 4 years after lymphedema started. I didn't have any problems at that time. Mine flairs up occasionally, but is usually under control. Hoping all can get the sleeves and treatments needed. Hugs!

      over 2 years ago
    • MelanieIIB's Avatar
      MelanieIIB

      Jesse0218, thank you for your kind words. So glad the check is going to be reissued to you and that you have some resources such as your health coach. As for cellulitis, both times I had it, it was caught early so I only needed antibiotics and did not have to go to the hospital. It is important to know the signs so that you can get to a doctor right away. Of course as with everything else, everyone is different, but my first indicator of cellulitis was that I had red bumps on my wrist and my wrist felt warm/hot to touch it. My arm was also achy. I called my oncologist's office and the NP made time to see me that day. When you have time, it may be helpful to do a websearch for signs of cellulitis in lymphedema. You don't have to have all of the symptoms to have cellulitis or the beginnings of it. I had some of the symptoms, but I did not have fever. Here is a helpful site: http://www.breastcancer.org/treatment/lymphedema/infection and another article: http://www.lymphnotes.com/article.php/id/557/

      over 2 years ago
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