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    victoria14 asked a questionOvarian and Fallopian Tube Cancer

    This is a question about my husband's cancer, lung cancer

    • CAS1's Avatar
      CAS1

      He has an ALK mutation ?

      I think there are a few drugs now for this mutation..These are all new treatments so there is not a lot of experience long term.. But the really good news is..that people who have been stave iv and on targeted treatments are now having surgeries to remove a tumor or two that seems to still be active. 5 years ago this would not have happened.

      The future is only good for these targeted treatments..Have him discuss his sides with the Onc. maybe a tweak can help him gain more energy like an exercise program or even make sure its not depression.

      over 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I haven't taken Xalkori nor the medication your husband is currently taking. However, I know people who have. I do believe it is a lifetime arrangement ... or one that goes for as long as the medication is effective. Fortunately, as CAS1 says, when one stops working, there have lately been others available to take their spot. That's GREAT news for lung cancer patients!

      over 5 years ago
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    victoria14 asked a questionOvarian and Fallopian Tube Cancer

    Anyone know Alesensa chemo?

    • LiveWithCancer's Avatar
      LiveWithCancer

      I never had heard of this drug, but I looked it up. alecensa has a 93.5% response rate. That is AWESOME!

      From a press release by the pharmaceutical company:

      Regarding safety, there were no treatment-related deaths and/or grade 4 or higher serious adverse reactions assessed according to CTCAE (Common Terminology Criteria for Adverse Events) defined by the Japan Clinical Oncology Group. The most frequently observed grade 3 or higher adverse reaction was neutropenia, and the incidence of the adverse event was 4 out of 58 patients (6.9%) who were treated twice daily 300 mg, the approved dose.

      almost 6 years ago
    • GregP_WN's Avatar
      GregP_WN

      I've not heard this name either, but that doesn't mean it's not used a lot. The numbers that LWC lists are great numbers, we hope he does well with it. Please report his experience on this so others that have this question will be able to look it up if they need to.

      almost 6 years ago
    • CAS1's Avatar
      CAS1

      Your husband has an ALK fusion mutation. Xalori is typically first line therapy. Alesensa is a similar drug and both can offer some dramatic results for this mutation. The problem is that eventually they stop working. But the good news is there are others in the pipeline and the body forgets and so you can try the Xalori or other drugs again maybe in lower amounts to offset the side effects. So several good options.

      almost 6 years ago
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