God bless you for writing and you will be in my prayers....Go to IBC website ...it is very inspiring...a woman with stage 4 has written an amazing testimony and I think she has dealt with this for almost 15 years or more. Hugs to you, too.
- Franklin, WI
- Member Since Sep 2012
Their Diagnoses (1)
- Survivor: Inflammatory Breast Cancer
- Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female, Age: 59, Stage IIIC, HER2 Positive: Yes, ER Positive: Yes, PR Positive: No
- View this journey (12 Experiences)
Viking started following4 months ago
LillyRoseJazz wrote on Viking's wall
Hi Viking...I am new to the site. I was diagnosed with IBC in February 2015. After further testing it was discovered two tumors in right breast. Skin was starting to show IBC on that breast. I had a mass between the two tumors the size of a small apple. One tumor was HER2 positive and hormone negative, the other tumor was hormone positive but HER2 negative. I also had chemo started within two weeks of diagnosis. It was for 5 months, then double mastectomy, radiation and now Anastozole. Herceptin affected my heart so I had to stop it after five months but now my heart is back to normal. Just found out cancer is in my lungs. They had removed 21 lymph nodes and 4 were positive they know it was in my lymph nodes when it was diagnosed. I just wanted to share my story with you. I am 44. I thought I had this beat but now the journey continues with this new discovery last week. Hugs to you...
Viking wrote on GregP_WN's wall
Thank you for the amazing job you do on this site. I'm glad you liked my post this morning. Sometimes people are "frozen" when they first get a diagnosis and just need someone who has been through it to motivate them.
Viking wrote on gah's wall
I have inflammatory breast cancer and I don't mean to alarm you, but this is the most lethal and aggressive form of breast cancer there is. I urge you to get started. 4 months ago for a diagnosis is too long to wait. And this type of cancer is not a tumor, it is infiltrating your skin and lymph system and has access to your whole body. My chemo started within two weeks. And this cancer is only diagnosed as stage 3 or stage 4. I will be a 4 year survivor in November and I still get checked every 3 months for recurrence. I'm urging you to get started because this type of cancer is nothing to wait around for. God bless you. It took 6 months of chemo, surgery, 6 more months of chemo, and 33 radiation to get me to where I am today. You can do it too!