• Viking's Avatar

    Viking shared a photo

    Wall_0b273a57-b1f5-49b4-b917-b1b89fd9a5b3

    70 years ago my dad, Rodney Johnson, caught this Muskie at a favorite spot in northern Wisconsin! He passed away 16 years ago with lung cancer metastasized to the brain. My mother and I are still here as 33 and 8 year survivors missing him every day. My husband just diagnosed with 4th stage kidney cancer with bone and lung metastasis. My grandparents died in the 50’s and 60’s from cancer also. Cancer has been part of our loves since 1913 when my great grandpa died of bladder cancer. We have lived wonderful lives and and have no regrets whatsoever. We are Norwegian Vikings to the core and fight with everything we have! We are going to have a great Norwegian banquet in heaven with every family member attending!

    2 Comments
    • CancerChicky's Avatar
      CancerChicky

      I hope your banquet is the best ever!

      1 day ago
    • Viking's Avatar
      Viking

      It’s going to be amazing...Iand we will be able to eat continuously and never gain a pound! You are invited along with all my survivor friends. Skal!

      1 day ago
  • Viking's Avatar

    Viking started following

  • Viking's Avatar

    Viking asked a questionBreast Cancer

    4th stage kidney cancer

    4 answers
    • 2943's Avatar
      2943

      Has your oncologist told you how they want to treat back?

      11 days ago
    • SandiA's Avatar
      SandiA

      I was on opdivo for stage 4 melanoma and had good results. Stopped treatment almost three years ago and staying stable.

      11 days ago
    • Viking's Avatar
      Viking

      They want to start opdivo and Yervoy tomorrow. Yes, it has spread to bones and both lungs and we were just diagnosed last week. They spent a month testing and and investigating and he is worse than a month ago with the back pain. He can’t sit up now. I don’t know why this took so long to get started. I have spent 8 years and counting at this excellent hospital clinic with my own cancer and they have been perfect for me.
      I don’t like that every time we go there they keep asking him where his pain is and they aren’t communicating with each other about his issues.

      7 days ago
  • Viking's Avatar

    Viking asked a questionBreast Cancer

    Question about 4th stage kidney cancer spread to bones and lungs

    • po18guy's Avatar
      po18guy

      Sorry to hear this. It will be a challenge. If you are in the US, I would definitely get a second opinion on both pathology and treatment options. The best place to receive this is at a National Cancer Institute designated comprehensive cancer center. He might also want to consider a clinical trial (coming from someone who has been in four trials). Find the nearest NCI center here: https://www.cancer.gov/research/nci-role/cancer-centers/find

      13 days ago
    • GregP_WN's Avatar
      GregP_WN

      PO has some good tips for you. All of us here at WhatNext wish you both the best!

      13 days ago
    • 2943's Avatar
      2943

      I agree with PO. Write your questions down. Always go to his appts. Sometimes our hearing shuts off. I went to a teaching hospital for a second opinion and never left. I received wonderful, personalized care at the top level. Keep in touch as you hear what your team is suggesting.

      12 days ago
  • Viking's Avatar
  • Viking's Avatar

    Viking asked a questionBreast Cancer

    Lung Cancer spread to spine and/or ribs (husband)

    8 answers
    • BarbarainBham's Avatar
      BarbarainBham

      I went to the ER last week with right back pain sometimes going to my right front above the waist, below the ribs. I've had it before, and each time they order an immediate CT scan and find a tumor in my abdomen. This time it wasn't pressing on any organs, but close, and they thought abdomen nerves were being aggravated, which also caused nausea.

      I was admitted for pain control management. They gave me Dilatid by I.V., which works in about 5 minutes! (Another admission they gave me morphine by I.V.) They also started me on Compazine for nausea and Narco for pain. I came home Friday afternoon and have been writing down the medicines I'm taking with the time, along with my BP, which was way up the first day.

      I would advise your husband to either call his doctor or go to the ER, where they will address his pain immediately after triage(?) and probably admit him to the Oncology floor for a day or so (or more if they start chemo). It's such a relief to feel better that I ENCOURAGE HIM TO DO THIS AS SOON AS YOU READ THIS POST, AND TELL THEM YOU NEED HELP, THAT HE'S IN BAD PAIN. I was even approved for a painkiller in the ambulance, so they know you are in pain and understand.

      If his doctor won't help with pain, he should feel free to go to the ER. A doctor told me nobody should stay in pain in 2019. We have too many drugs available.

      Best wishes.
      Barbara

      16 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      You shouldn't ever stay in pain while waiting for biopsy and MRI again. That's what ER's are for! Please let us know what's happening! We understand how bad it is.

      16 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      As Skyemberr said, be as pushy as you need to be. There are plenty of other doctors who would be more attentive to cancer pain. I'm changing my doctor for the same reason! She was my new oncologist with second visit last Tuesday, but had all the previous oncologist's records, who relocated out of state, so "Adios" to her!

      Isn't there a country song that says "Adios, goodbye, arrivederci to you"!

      16 days ago