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    vikkic232 posted an update

    On 1/12/22 I was 90 day post auto stem cell transplant, completed PET scan and that eve was informed I am in full remission. I have a 3 yr maintenance with Rituxan. I am so relieved and feel blessed. Upcoming appt with my doctor in a few weeks. Any suggested questions I should ask or consider? Thank you all

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    vikkic232 shared an experience

    Celebration (Remission)

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    vikkic232 shared an experience

    Side Effects (Memory changes): After discharge and a positive response to treatment, I have noticed memory probs, word retrieval is odd and frustrating. Attention span can be so short. Low appetite continues, lost weight without trying, fatigue continues but is slowly improving some days. Some bouts of sadness or crying outbursts where i just feel overwhelmed or worried or it feels like the realization that i have (or had) cancer hits me all over again.

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    vikkic232 shared an experience

    Clinical Trial (Auto stem cell transplant/ high dose chemo to address aggressive protein): Before agreeing to the trial, i have to share having bone marrow biopsies freaked me out- the pain was intense for me.I responded very well to the initial rounds of chemo and was in remission. However, with more in depth testing as part of the trial i had a choice to either go directly to maintence treatment or have the transplant, as a protein was detected that could make cancer cells very aggressive. I was terrified but wanted the best opportunity to remain in remission. I had a Hickman implant- very frightening, bone cell stimulation i experienced odd bone pain from that, stem cell harvesting (which was not painful at all)and then a little over 3 weeks in the hospital. My first time being in a hospital longer than 2 days. My hair has fallen out- i shaved my head before going in and the the rest of my hair fell out, except brows and lashes. I experienced the nausea diarrhea mostly, chills and fevers and fatigue. Generally felt like like crap, and little to no appetite.

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    Drug or Chemo Therapy (Chemotherapy): Initial six rounds of chemo was frightening as it was unknown. But it didnt interfere too much in my life- i missed 2-3 days from work per month mostly for fatigue. That was the only side effect i experienced

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    vikkic232 shared an experience

    Oh No (Just Diagnosed): I was informed I had cancer a few days after my mom died. I was in shock and immediately compartmentalized and kept it to myself until i completed all testing