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    virginiarose wrote on AlexNiles's wall

    AppeNdices what type of stomach cancer do you have? Have you had surgery yet? I have GIST stomach cancer and has surgery in July.

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    virginiarose asked a questionStomach Cancer

    Food

    17 answers
    • BarbarainBham's Avatar
      BarbarainBham

      AuntBerly, have you tried liquid Boost or Instant Breakfast for extra protein? The chocolate is good, and if you freeze it it tastes like ice cream. Yogurt for a snack is good for you, too. Around the time of my procedures and surgery two years ago, I also had two big deductibles to meet, plus co-pays. At the large clinic where I go, they have financial counseling that includes a program for forgiving deductibles, which I was approved for that year. (You should check into that where you go.) I'm now on Medicare, so everything is different, but my previous deductible was $250 a year starting in December and then another $250 in January 2013, plus I was supposed to pay about 10 percent of the cost of procedures and CT scans, which added up to a LOT that year. It sure takes a lot of pressure off to know you don't have to pay the deductibles.

      about 6 years ago
    • barryboomer's Avatar
      barryboomer

      Make your own Protein Shake with Whey Protein Powder, an Banana and a big scoop of Green Powder Drink. Very healthy and easy to go down....Boost or Ensure is NOT really Food.

      about 6 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      If you go to a not for profit hospital or a medical school clinic, they should have some organized financial assistance. I forgot to mention that the American Cancer Society can give you a list of organizations who pay deductibles and co-pays for people with insurance.

      Patient Services, Inc., is accepting GIST patients (and others) who need help. As you know, WhatNext won't post phone numbers, so go to this link to the newsletter if you would like their phone number. It's at the bottom of each page.

      http://www.patientservicesinc.org/Portals/0/PSI_Winter2015_Web.pdf

      about 6 years ago
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    virginiarose posted an update

    I had surgery on July 30, 2014. They removed the lower esophagus and the first half of my stomach. They also removed my left adrenal gland. I was in ICU for 5 days than moved to a private room. I remember in ICU they helped me out of bed. When I got to the private room I remember calling the nurse to help me get out of bed. LOL. 2 nurses came and stood on the side of my bed. I felt like a fish out of water but eventually I was able to pull my self up. When they did the swallow test I had a leak. So I was put on tube feeding that went directly into my bowels. All total I was in the hospital for 3 weeks. After 1 week at home I got a fever and my incision opened up and puss came out. I called the doctor and he prescribed an antibiotic however it blocked up my J-tube so I had to go back to the hospital for another week of antibiotics. I remember all I wanted was a drink of water. After 6 weeks the doctor said I can start setting soft foods. However that glass of water I've been dreaming about tastes awful. So far I've only lost 12 lbs.

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