• Warren's Avatar

    Warren started following

  • Warren's Avatar

    Warren asked a questionMultiple Myeloma

    Finding an Oncologist in South Miami

    5 answers
    • CAS1's Avatar
      CAS1

      Should know how to coordinate for you.

      12 months ago
    • geekling's Avatar
      geekling

      Im in South Florida and have no recommendation to make...

      Excet the University of Miami is a teaching hospital ans usually has a top notch staff. Maybe a call to them would get you a doctor who maintains a separate office?

      Happy holidays.

      12 months ago
    • Warren's Avatar
      Warren

      Thanks for your input. I appreciate your taking the time to respond.

      12 months ago
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    Warren wrote on turbineman's wall

    Had auto transplant July 25th this year. Doing well so far as side effects. Will get bone biopsy 1st week of Nov. We will, of course then find out how successful the transplant was. Oncologist intimated I may be on Revlimid maintenance indefinitely. Was wondering if you have been on a maintenance program as well.

    5 Comments
    • Charlieb's Avatar
      Charlieb

      They put me on Revlimid because I already have neuropathy :-). Not really discouraged, more upsetting and frustrating. I see my doc this week and will know more. Thanks for your comment.

      over 4 years ago
    • Debio's Avatar
      Debio

      I had an auto stem cell transplant 1 year ago. I have been on revlamid and will be on revlamid indefinitely as long as it is working. I have also had kyphoplasty to stabilize my lower lumbar vertibrae because of compression fractures. My number are great. I have little side effects. I teach when I can (when I feel up to it) but yes, I have neuropathy, I have to use a walker to get around. I am in discomfort all the time but I am glad to be alive and willing to put up with whatever I have to so I can be a part of this world!

      about 4 years ago
    • turbineman's Avatar
      turbineman

      Yes, I had maintenance chemo for some years. Stopped in early 2011 for a Mini-allo SCT and have not been on any since then. Disease is stable!

      about 4 years ago
  • Warren's Avatar
  • Warren's Avatar

    Warren asked a questionMultiple Myeloma

    Could not produce enough stems cells for a transplant. Anyone had this problem?

    • Charlieb's Avatar
      Charlieb

      They wanted to get 10mil cells from me but only got 6. It took them four days to collected the 6mil. We used neupogen and Neulasta. They had asked me about exposure to radiation, which I had none. Could they get any cells from you and what is the next step?

      over 4 years ago
    • Warren's Avatar
      Warren

      Thanks for your input. I got 3 days of neupogen with no stem cells produced and on the 4th day along with neupogen they gave me mobozil. Still no stem cells. I am scheduled to try again in another 7 weeks. I had radiation in Jan. and three rounds of revlimid. Was off of revlimid for 4-1/2 weeks. They thought that this might be inhibiting the stem cell production. Did you get the transplant using the 6mil?

      over 4 years ago
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