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    Question: Survivor's Guilt

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    Wawa asked a questionNon-Hodgkin Lymphoma (NHL)

    If NHL comes back after a little over 4yrs in remission, do you get the same symptoms you had the firsrt

    6 answers
    • ariez's Avatar
      ariez

      I have DLBCL that recurred and is in remission now. The first time it was a swollen neck which caused stiffness and was biopsied. About a year later, the recurrence was caught by the PET scan which showed 3 suspicious spots. The spot which was biopsied was on the back side of my hip. My neck was fine. I didn't have any other symptoms to show recurrence.

      over 4 years ago
    • leevan2245's Avatar
      leevan2245

      I had CHOP-R and radiation back in 2011 for DLBC. Last June I was diagnosed by my (former) oncologist with Follicular Lymphoma and have been treated with Rituxan. However,my second opinion doctor, upon initial look a couple of weeks ago, is fairly certain I have a recurrence of DLBC. I was devastated to say the least. Interestingly, the lymph nodes in my neck that were symptomatic back 7 months ago have gone down since being treated with Rituxan but my new onc found 2 very small symptomatic lymph nodes in othjer places. So....he has ordered a PET scan (this Thurs) then I will meet with him again next week to decide treatment. Needless to say I am terrified.

      over 4 years ago
    • leevan2245's Avatar
      leevan2245

      Oh....and I feel fine....no B symptoms in 2011 or now.....nothing but the swollen lymph nodes.

      over 4 years ago
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    Wawa wrote on barbara815's wall

    Hi and welcome Im wawa and a survivor too NHL large B cell 6-8-10 advanced 4th stage and 3yrs 4mos almost the 16th. I have one son and 2 grandkids and the best husband ever oh and I have a 4 legged baby named Luke Skywalker and I love to laugh