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    waynec1980 wrote on Tinky's wall

    Tinky...I have not been able to read your full description of what happened & would like to know what happened & how you are doing. I was diagnosed with stage 111c malignant melanoma 2 yrs/2 mos ago. I had to have over half of my ear removed, they cut into my neck & shoulder about a 10 inch incision to remove 40 lymph nodes, 4 were cancerous, along with 2--18mm lumps below my ear, removed my saliva gland & parotid gland because they were cancerous. The surgeon cut dozens of nerves & muscles. It has been the most painful thing I have ever experienced. I STILL HAVE constant pain 24 hour a day/7 days a week. My pain NEVER gets below a 5 on scale of 1 to 5. I take Lyrica,Oxycontin, Hydromorphone as needed, levorthyroxine, sertraline & 1 or 2 other meds. I had 19 months of chemotherapy, along with 4 weeks of very intensive radiation. Due the radiation, my epiglotis was damaged, fluid filled my lungs up about 90%, real bad pnemonia & ended up being in the hospital for over 2 wks. Very frustrating time, then I had complications with chemo & had to cut back the dosages because it put me in the emergency room a couple of times. Anyway, I have had no new sign of cancer for 18 months now & I feel that I am going to beat this ugly disease. I get very discouraged though due to the constant pain. Can you tell me if you have nerve damage & if so what are you doing to aleviate the pain? How are you doing now & what does the future look like. I would really appreciate you getting back with me....Thank you & GOD BLESS YOU & build you up to beat this thing!

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    waynec1980 shared an experience

    Radiation (External radiation )

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    waynec1980 shared an experience

    Drug or Chemo Therapy (Chemotherapy)

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    Procedure or Surgery (Other)

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    waynec1980 shared an experience

    Oh No (Work problems): Mole in my upper left inside of ear that never new existed. Ended up having 60% of ear removed, 2-cancerous15mm tumors, 60 lymph nodes, 6 cancerous, removed saliva gland & parotid gland cancerous,cut behind my ear & clear down my neck to chest. To this day, 19 months later, the pain in m neck, shoulder & ears, because of all the nerves that were cut, is still between 7 - 10. Prescribed numerous medications & still have not found the right balance that does not make me groggy & sleep 4 - 6 hrs during the day. I will nod & fall asleep in the middle of a conversation or working at the computer & will fall asleep.

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    User: GregP_WN