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    Question: Afinitor

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    User: shebear

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    User: sandi

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    waynej asked a questionRare Cancers

    anyone out there taking Afinitor (everolimus)

    • edbellinger's Avatar
      edbellinger

      Yes I have been on that drug since November. Getting a cat scan next week to see if there are any improvements.

      about 3 years ago
    • eccrine100's Avatar
      eccrine100

      I've been on afinitor since december 2011 for skin cancer eccrine porocarcinoma that spread to my lungs. Seems to be working, at least to slow the cancer up, suggested by positive xray results. I was on nexavar prior to this. None of the drugs provide a permanent solution so my issue now is what follows, so far I've not found any trials or good suggestions. My checkup is next week so wish me luck.

      I seem to have avoided any side effects.

      about 3 years ago
    • lotusredeemed's Avatar
      lotusredeemed

      I took Afinitor for one month for the treatment of metastatic breast cancel and had a terrible reaction. I have an itchy rash (almost everywhere on my body) that is constant and even after a month of not taking the medicine, I am still suffering with the itch as much as I did initially. I also had sores in my mouth and throat, a bloody nose, and my hair and nails stopped growing. All of these symptoms have stopped. But I am still plagued by the itchy rash. If you begin to have a rash almost immediately, please be sure to talk with your healthcare provider. I wish that I had stopped taking it immediately, because I have no idea how long it is going to take before I am free of the itching. It's been pretty miserable.

      over 1 year ago