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    wellness started following

    User: CancerNews

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    wellness wrote on Channa47's wall

    Yes prayer helps me,dealing with one and now a second cancer MM.

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    wellness asked a questionMultiple Myeloma

    Could those who have Multiple Myleloma, or who have helped people with MM write me.

    5 answers
    • lansford_cub's Avatar

      I started a blog shortly after I was diagnosed ~ 3.5 years ago.... http://ndmyeloma.healthblogs.org/ ....it is nothing great but I tried to chronicle my experiences - for posterity! Since then I have decided that posterity will have to wait and that MM has already taken way too much of my time. I have since stopped blogging for a couple of reasons, one being hte amount of spam and the other being that I don't have the time to devote to it... plus I have read other blogs that seem to be so self-serving that I did not want to go there!

      Feel free to chat me some time or send an email, I can share my experiences if you like. Everyone is so different except that we (MM) are so much a like - if that makes sense! You have plenty of people out here that you can turn to for support and shared experiences.


      over 8 years ago
    • Gma's Avatar

      I was diagnosed in november 2005. I was only on medication for 4 months before I had an autologus stem cell transplant. Then in August of 2006, I had an allogeneic transplant with my sister as my donor. I have been in complete remission until May of 2012. The m protein was present at 0.1. I am getting tested frequently and we are watching closely. At this time, I am on no treatment. I live in SC but I go to MD Anderson in Houston for my treatment. If you would like to talk, I will be glad to call you if you leave me your number. Please know that there are many treatment options out there, so please don't lose hope.

      over 8 years ago
    • KatieL's Avatar

      Katrina: I am sure this limbo state is very agonizing. I would ask my physician how long before a bone marrow biopsy can be done. Also, ask what he or she thinks of your present state from the other tests being done--M spike, FISH assays, skeletal surveys, etc. I was in a "watch and wait" period for four years before my numbers escalated to the point that I needed to have treatment. It was even possible that I could have stayed in that watchful state forever and never required treatment. I guess my real message is to ask more questions about your present state. My best wishes.

      over 8 years ago
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    wellness shared an experience

    Loss (My mind/Sense of Humor)

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