Hi WendyJackson,
Thank you for asking your questions. As you may know, we are a new network and adding new members every day. I am not a doctor so I can't answer your question with any certainty, but I did find this link to the MDS Foundation. It is an FAQ, maybe it can help?
http://www.mds-foundation.org/pdf/CEL411%20Factsht%20v8.pdf
In the meantime, I will see if I can find someone with MDS who can weigh in and share some perspective.
Thank you!
Karen