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    wendyp1000 asked a questionEndometrial (Uterine) Cancer

    Topotecan - Side effects

    • carm's Avatar
      carm

      Hello, I am an oncology nurse. It sounds like you have Topotecan induced sweet's syndrome. Sweet's syndrome is characterized by fever, neutrophilia, and painful erythematous cutaneous nodules. These nodules tend to occur on mucosal linings like the mouth, and include the vaginal vault as well. I used to work gynecological cancers and I have seen this with Topotecan before because it is a harsh therapy. Systemic corticsteroids are the gold standard treatment. Best of luck to you.

      8 months ago
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      wendyp1000

      Thank you so much for answering - you know, your mind goes hog wild and everything medical that happens to you seems to be cancer. I appreciate your response.

      8 months ago
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    Drug or Chemo Therapy (Chemotherapy): Gyn Onc wants to do a round of Topotecan - never heard of it. Waiting for approval from my insurance company or for the doc to come up with plan B.
    Update: began Topotecan in January 2019 - the actual physical side effects are infinitely better than the carbo/taxol from 2018. Less nausea, did not loss hair (thinning), way less achy joints. I just feel so very tired all the time.
    * however, it has really hit my platelet numbers hard.
    Hoping it does the job...

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    Drug or Chemo Therapy (Hormone therapy): I am currently taking Megace (Megestrol) and Arimidex. I forget which is the anti-testosterone and which one is the anti-estrogen. While it didn't seem to help stave off the growth of uterine cancer tumors, it seems to have stabilized my breast cancer growth. My breast tumor has not changed in size and was much less lit up on my latest scan. I'll take it!

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