• WhatNextEmails' Avatar

    WhatNextEmails asked a questionOvarian and Fallopian Tube Cancer

    A common question we receive is about long term side effects

    5 answers
    • po18guy's Avatar
      po18guy

      Honestly, I was never afraid of chemo. What I was concerned about was the cancer: there might not be any long term effects.

      Today, it is highly dependent upon which chemicals are used, in which combos, if any, most or all of them are the newer biological drugs, the dosage, one's general health going in, etc. etc .etc.

      If I make it to July, it will be 12 years and 20 drugs - discounting all of the prophylactic drugs, high dose steroids, chemo-modulatory drugs, total body irradiation and stem cell transplant. Except for the neuropathy (first because of Vincristine and secondly due to steroid-induced type II diabetes), I must say that life is pretty much indistinguishable from the aging process.

      Most of what bothers me is a result of that transplant. Housing two different DNAs in the same body has its challenges. To sum up, I will paraphrase the Blue Oyster Cult:

      "Don't fear the chemo..."

      3 days ago
    • GregP_WN's Avatar
      GregP_WN

      I have never considered not doing the treatment. At my first Dx, I was only 28, that's too early to just lay down and die. For that matter, almost any age is not the time to just lay down and give up, but, I realize there are some that have no other avenue.

      The treatment doom and gloom stories are blown out of proportion, it's not as bad as some people make it out to be. Some of those people are even people that have never had chemo or radiation. Don't tell me how bad something is unless you have been through it.

      And PO, I hope you don't have a fever.....but we need more cow bell!

      2 days ago
    • BoiseB's Avatar
      BoiseB

      There are long-term side-effects to almost every therapy some people have them some don't, In some people they are permanent in others they subside, What bothered me was the Dr.s only discussed the immediate and temporary side effects. They didn't discuss the ones that might pop-up later. They didn't even acknowledge neuropathy as a side effect. Knowing the side-effects would not have caused me to reject treatment but it sure would have helped me to cope with the long term side effects when they occured

      2 days ago
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    WhatNextEmails asked a questionCervical Cancer

    We have had a few questions emailed to us concerning treatment facilities, wanting to know if they are shutting down.

    • Bengal's Avatar
      Bengal

      No unnecessary visitors in hospital. Curb drop off and pick up for patients. Many nonessential services are temporarily closed. My mental health visits are now by telephone. Not as effective in my thinking by better than none at all. Everyone has to run the gauntlet of questions to get in any facility. And this could just be the beginning.

      4 days ago
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    WhatNextEmails asked a questionHead & Neck/Throat Cancer

    Since I've been sort of busy for the last week I've let me emails get ahead of me.

    8 answers
    • JustForToday's Avatar
      JustForToday

      I loved coffee before treatment started. It did horrible things to my body if I drank it during chemo. My taste buds hated it and my stomach roiled if I drank more than a swallow. It was a joyous time when I was able to enjoy it again after chemo was over.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I drank coffee, but not as much as I did before, because coffee didn't taste as good to me. Once I went on immunotherapy, my coffee drinking picked back up.

      about 1 month ago
    • BoiseB's Avatar
      BoiseB

      I could not drink coffee during treatment. But that was because I could not eat or drink because of my tumor. I had a feeding tube and there was a formula that was put into the tube. I don't like the taste of coffee. I do like the results of caffeine. I can only take instant coffee and I need to put at least 2 tablespoons of sugar in it. I have also found that I can get the caffeine kick by taking a teaspoon of instant coffee by mouth and washing it down with a tall glass of water. I hope I also get the health benefits.

      about 1 month ago
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