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    User: GregP_WN

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    WifeDonna posted an update

    Is scared about husband's upcoming surgery.

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    WifeDonna shared an experience

    Procedure or Surgery (Surgery): Scheduled for Oct 25th, 2011

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    WifeDonna asked a questionHead & Neck/Throat Cancer

    Any advice on swallowing without an Epiglottis? Can it really be done without aspiration?

    • KarenG_WN's Avatar
      KarenG_WN

      Hi WifeDonna,

      Just wanted to let you know that we are reaching out to see if we can find someone with this experience who can give you some perspectives. As you may know WhatNext is still new and our network is growing. In the meantime, I'm doing my best to find someone who can help.

      What did your husband's doctor have to say?

      Please know our best wishes are with you and your family.

      Thanks,
      Karen

      almost 5 years ago
    • WifeDonna's Avatar
      WifeDonna

      Thank you Karen. We met with the nurse practitioner today and she said my husband will be receiving therapy to "retrain his muscles." She demonstrated what swallowing will probably look like and the steps that accommodate the process. We were very happy with the depth of information she shared with us. We talked about feeding tubes, tracheal equipment and answered our list of questions.

      We are going to CENTA which is actually near Carmel. Our surgeon will use the da Vinci robot at St.Vincent's Hospital.

      Thanks again for the well wishes and response.

      Donna

      almost 5 years ago
    • elliott's Avatar
      elliott

      i also dont have a epigollits glan it was tough the frist year but ive adjusted quite well frist thing i did was go for swolling therpy. dont get me wrong i still have a bad day hear and there you just have stay away from a few foods one i jello good luck

      almost 5 years ago
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    User: danellsar