Hi and welcome to the site! I noticed you posted this as an update. It sometimes takes a little to get used to how the site works. If you will repost this as a question by clicking the question tab at the top of any page, then fill in the question there, it will be seen by most everyone browsing the site, and also sent out to those who are most like you in diagnoses and able to answer the question.
give it a try and thanks for being here.