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    withGodshelp asked a questionNon-Hodgkin Lymphoma (NHL)

    Non Hodges follicular lymphoma what is the death rate age after being diagnosed

    7 answers
    • Jjoco's Avatar
      Jjoco

      I still remember the original death rates I was given by an oncologist when I was diagnosed with follicular lymphoma - he said about five years on average. Of course, that was almost 18 years ago.. Thinking of his words all those years ago still make me smile.

      I asked my current oncologist recently if there are really so many more people getting cancer, since the hospital seems to be constantly expanding the infusion suite. She told me it is because people are living so much longer with current treatments provided.

      Be sure you have updated information. Treatment protocols change constantly.

      2 months ago
    • Schlegel's Avatar
      Schlegel

      We don't know. Rituxan has increased the survival significantly, and newer drugs have expanded it even more. When I was diagnosed with Stage 4 FL I asked my doctor how much time I had. He said up to ten years. That was a good answer based on what they knew at that time in 2005. Most of with follicular lymphoma will die from something else.

      2 months ago
    • po18guy's Avatar
      po18guy

      You might consider signing up at https://www.cancercoachlive.com/app/lobby

      And watching their patient education webinar on follicular lymphoma. An hour long, it is very informative and confidence inspiring.

      https://www.cancercoachlive.com/app/follicular-lymphoma/presentation/092618_CAN_FL_PAT

      2 months ago
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    withGodshelp shared an experience

    Side Effects (Bone thinning (osteoporosis)): I have a chemo fog constipation severe migraines extremely tired sleep a lot depression fear the unknown. Excessively dry mouth hot flashes anxiety.

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    withGodshelp shared an experience

    Oh No (Cancer is back/Recurred ): I was first diagnosed in 2010 I was 43 years old my mother had already died from small cell melanoma my sister had died from bone cancer which is a horrible cancer and the worst death I've ever seen in my life. My father was still alive at the time and he was diagnosed with non-Hodgkin's lymphoma back in the 80s when they didn't know all the sub parts of lymphoma so they just gave him really hard chemo which was terrible but he was unable to finish it. After being diagnose in 2010 with non-Hodgkin's follicular lymphoma b cell I was petrified because I had already seen two of my loved ones die from cancer even though it was a different kind. I took 30 rounds of radiation and I did the two years of rituxan I went back for my regular checkup in the beginning of 2019 and I had more spots and they had grown quick I was more scared and upset when he told me to come back then I was the first time for some reason I am down to my last treatment of rituxan I will have it the end of February then I start going to see my oncologist every 3 months for a year and have a lot of CAT scans to see if it's grown any but the next time it comes back we'll have to do a harder chemo and I'm afraid of that.

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    withGodshelp shared an experience

    Drug or Chemo Therapy

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