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    User: CancerNews

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    User: alimccalli

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    User: alimccalli

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    WVUGirl76 shared an experience

    Loss (Fertility): I was 35 when I was diagnosed. I had just had my first baby and I was elated. I was literally thrilled to be a mom. I have always wanted to be a mother and having my son felt like such a gift. 4 weeks later I was diagnosed while at a follow-up appt. with my OB. I felt like I went from the highest high of my life to the lowest low in minutes. It was devastating. After the staging and it was determined that I was stage IV, the Dr. Recommended starting treatment immediately. My husband and I had overnight to make a decision about saving my eggs or starting treatment. We chose treatment. I would find out later that my Dr.'s were concerned that I would die at anytime because their were tumors wrapped around my lungs. They feared that my lungs would be punctured and I would suffocate. I believe I made the only real choice that I had and it was because my husband said this to me "If we wait to save your eggs, we take the chance that you won't live, isn't it more important to be a mother to one child then not around for any".....He was right, I had a responsibility to him and to my son and myself to fight this thing. We started treatment the very next day. I had one mensus during treatment and then it stopped. That was 3 years ago (2011) and it has not returned. I did not expect it too as I would go on to have BEACOPP and then an auto transplant. BEACOPP causes infertility almost always and so does the auto transplant. Being that I had a double whammy, it would be a miracle if it returns. That said, I do believe in miracles. I'm a realistic Optimist.

    1 Comment
    • carolk2222's Avatar
      carolk2222

      I am so glad you have your son. You did make the right decision. You are here for him and your husband. They need you. I like you found out I had hodgkins lymphoma from my 6 month check up with my OBGYN. He saved my life. I was afraid when I heard the word cancer I was gonna die and never see my daughter grow up. She will be 32 this month. She and her husband have blessed me with a handsome grandson who turned 3 in Feb and a beautiful grand daughter who will be 2 in June and there is another one on the way the end of October. God has truly blessed my life!

      over 3 years ago
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    WVUGirl76 shared an experience

    Other Care (Hospitalization): After my last cycle of BEACOPP, I was neutropenic. One morning, I awoke and just didn't feel good. Within 2 hours of waking, I had a fever of 103. I was in excruciating all over pain. I was rushed to the emergency room where I received the diagnosis of Septic Shock. Fortunately, they were able to stabalize me. I was in the ICU for several days and then moved to the oncology wing where I stayed for a week until I was no longer neutropenic. It was determined that I had the beginnings of a urinary tract infection and that is what caused my fever & symptoms. I share this story so that others may know the importance of practicing extreme caution while neutropenic. Excessive hand washing, hand sanitizing, crowd avoidance.....This episode nearly cost me my life. When you don't have white blood cells to protect against infection, it is critical that you take all necessary precautions as well as react as necessary (IE- go to the hospital if your temp. goes to 100.2) because you will get sicker much quicker than others and than you ever have before.

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    • alimccalli's Avatar
      alimccalli

      I cannot agree enough that you need to listen to the nurses (this was who gave me all of my info) about precautions to take when you are neutropenic. Some of it feels silly, like wearing a mask if you have to go out in public. It can go very bad very quickly if you pick up an infection - don't hesitate to call your doctor/nurse or just go to the ER. It's not a time to be careless or take chances!

      over 3 years ago
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    WVUGirl76 shared an experience

    Drug or Chemo Therapy (Chemotherapy): After ABVD failed, I was switched to escalated BEACOPP. This chemo made ABVD seem like a party. It is extremely toxic and regimen. The regimen is given over a several week period. It breaks down as follows:
    Drug Dose-Escalated BEACOPP Method Cycle Day
    (B)leomycin 10 mg/m² i.v. push day 8
    (E)toposide 200 mg/m² i.v. infusion day 1-3
    (A)driamycin (doxorubicin)35 mg/m² i.v. push day 1
    (C)yclophosphamide 1250 mg/m² i.v. infusion day 1
    (O)ncovin=Vincristine 1.4 mg/m² (max 2 mg) i.v. infusion day 8
    (P)rocarbazine 100 mg/m² orally day 1-7
    (P)rednisone 40 mg/m² orally day 1-14

    I found this to be extremely difficult. I was physically wiped out, I was nauseous, it destroyed my white counts despite neupogen and neulasta and I lost all my hair. Completely bald, it all fell out within days of starting this regimen. I would do it all again and again if it meant I would live so I do not want to scare anyone, I am just trying to be honest about the effects on me.

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    • GregP_WN's Avatar
      GregP_WN

      Thanks for the information on this. I had ABVD and MOPP this was 27 years ago, this wasn't even available then.

      over 3 years ago