• Zoltan1's Avatar

    Zoltan1 asked a questionHead & Neck/Throat Cancer

    Fmla leave is almost used up. What do I do about care for my husband when I must return to work?

    • SueRae1's Avatar
      SueRae1

      Speak with a social worker at the center/hospital where your husband is being treated,to discuss and start applying for all services he and your family are entitled too.

      Find out what services his insurance covers (nurses to clean his feeding tube, in house PT, etc), also call your local visiting nurses - they have great programs.

      about 4 years ago
    • LisaLathrop's Avatar
      LisaLathrop

      Check with your visiting nurses associations. Many come in 2x a day to help care for patients...and are often times covered by insurance. These folks are skilled in caring for the feeding tubes and so much more home care than we can even think of.

      Also, how many people have said to you "If you need anything, just call me"? I had a hard time accepting help but it comes down to the fact that people TRULY do want to help, they just don't know exactly what to do..so you have to tell them...they'll feel needed....and there are more people out there who are willing if you just ask. Even coming by for a few hours to sit with your husband and chit-chat or change the tv to his favorite channel and watch for a bit, is such a small task to do. Think of it as a casual visit / companionship rather than a watchful eye.

      Check out this site:
      https://mycancercircle.lotsahelpinghands.com/caregiving/home/
      It helps your friends, neighbors, family coordinate meals, care, etc. by using a schedule. That way you don't get many people coming over at once (all bringing pans of lasagna!) and no one at other times of the day.

      http://www.caregiving.com/ - is also a good site that connects caregivers, has videos, support networking, etc. to help relieve the stress on caregivers.

      These links plus so much more are on my website: www.cancerkaleidoscope.com

      about 4 years ago
  • Zoltan1's Avatar

    Zoltan1 wrote on jimfrommin's wall

    How are you doing now?
    Still cancer free!

    1 Comment
    • jimfrommin's Avatar
      jimfrommin

      Sadly, no.
      My wife's had a leaking lymph duct in her chest in Jan.
      She spent 3 weeks in the hospital getting that corrected, but it was very draining for her.
      While they were looking for the cause of her sickness, they found the cancer has recurred.
      She ended up in ICU for a week about 2 weeks ago, and is now in home hospice comfort care.
      She's battled hard for 3 years, and has gone through XXX. All I can do now is try to make her comfortable.

      about 4 years ago
  • Zoltan1's Avatar

    Zoltan1 started following

    Question: Tracheal bleedingv

  • Zoltan1's Avatar

    Zoltan1 asked a questionHead & Neck/Throat Cancer

    Tracheal bleedingv

    4 answers
    • carm's Avatar
      carm

      Zoltan1,
      Hello, I can help you with your question. It can happen with a trach, that you might experience bleeding as a side effect of a trach. The esophagus is lined with small veins and the lining of the airway is moist and delicate. Sometimes these vessels get ruptured from a forceful cough or any strain. It does happen and if it is a surface vein, they close pretty easily so it is not a dire concern. Best of luck to your husband as well as yourself. You did the right thing going to the ER and posing the question here for clarity, Carm RN.

      about 4 years ago
    • shawn's Avatar
      shawn

      I;ve has a trach for a year now. I bled a lot from my tracWhen h at first (few months). Dryness was the major culprit. Using an HME at all times, even sleeping, helps and so do saline drops. It does get better.
      Unfortunately, ER don't seem to get enough training on trach patients. a recent trip to ER had a nurse putting oxygen tube in my nose. When my wife reminded her I breath only thru my neck the nurse told her it was working! Impossible, my airway and esophagus are seperate!

      about 4 years ago
    • welderdan's Avatar
      welderdan

      My trache bled for a while. I too thought something was amiss. My newly formed stoma finally healed completely after I finished the forever burning radiation treatments. Not a problem since.

      about 4 years ago
  • Zoltan1's Avatar

    Zoltan1 asked a questionHead & Neck/Throat Cancer

    1st appt with oncologist

    7 answers
    • bbay65's Avatar
      bbay65

      Keeping busy is key. When my mind wanders all kinds of horrible thoughts intrude. I notice when I'm home alone I feel worse. Happy music and tackling a project helps pass the time, and you may get a clean closet afterward?!

      about 4 years ago
    • SueRae1's Avatar
      SueRae1

      Waiting is the worst. You can't make any plans nothing is settled. I hate it. My best advice is to try and do things you really enjoy doing. I went to 4 movies in one week while I was waiting for one of my biopsy results, laugh out loud comedies were the best.

      about 4 years ago
    • Clyde's Avatar
      Clyde

      The waiting is terrible, but it will soon be behind you and your treatment will start. We've all been there. You're in good company.

      about 4 years ago
  • Zoltan1's Avatar

    Zoltan1 started following

    Question: Treatment