WhatNext - Myelodysplastic Syndrome – Kirby S

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Video Transcription

I have kept a written journal of my disease over the years, and I feel that writing down what's happening, it empowers me to feel more in control of my disease. I also chart numbers and keep graphs on it. Another thing that helps is websites like WhatNext, the Aplastic Anemia & MDS Foundation, and also the MDS Foundation. All of these let one get in touch with other patients having their disease or similar diseases. I've also volunteered to talk to other patients after they're diagnosed if they want to talk to another patient who's had good success fighting the disease, and I've enjoyed talking to them and emailing to them over the years.